[tri-med] Shriners reply

I asked the Shriners for help with Annette's hands and legs.  Her legs don't 
extend all the way.  Of course we know about the hands, right?  Anyway, this is 
what they replied:
"Orthopedic treatment has found to be of limited benefit in certain conditions, 
such as athetoid cerebral palsy, quadriplegic cerebral palsy, global 
development delay, many neuromuscular conditions, infantile seizures and 
hypotonia.
Review of your child's application shows that your child's medical condition 
would best be primarily treated by a docotr specializing in Neurology or 
Physical Medicine and Rehabilitation.  Although orthopedic surgeons may be 
invilved in your child's case, it is best carried out in a multidisciplinary 
Children's Hospital, rather than a specialty hospital such as Shriners.  As a 
result, we are unable to accept your child for care at the Houston Shriners 
Hospital.
Blah, blah, blah, blah, blah."

No one examined her.   We didn't even make it in the door. lol.

Annette
  ----- Original Message ----- 
  From: James Waite 
  To: tri-med@xxxxxxxxxxxxx 
  Sent: Saturday, August 24, 2002 10:01 AM
  Subject: [tri-med] ANNETTE Re: Re: Medical Coverage or lack of




  > ----- Original Message -----
  > From: "Harris Rachel L Civ WRALC/FMH" <Rachel.Harris@xxxxxxxxxxxxx>
  >
  > >
  > > I had been told that Shiners denied no on e---no matter how much money
  you
  > > make --I was told they would not deny anyone ----as long as they offer
  the
  > > services you need they should see you ---

  I talked with my Mom this morning, Dad's a Shriner. Has been for years. In
  fact, they just worked the Buick Open (golf tournament in Grand Blanc
  Michigan a few weeks ago) and they earned $14,000 for the Children's
  Hospitals over 4 LONG days of work. This $$ number is up from last year
  because Tiger Woods was there this year and the crowds increase. They (the
  band Dad is part of) worked a food and a beer tent and get 10% of the take
  for the hospitals. They got another few thousand from the donation jars for
  the "ladder of smiles". All the trips/conventions etc that Shriners are
  known for are paid by the Shriner's themselves. The money they raise ALL
  goes to the hospitals and doesn't pay for their activities. My dad is in an
  Oriental Band.

  She talked with my Dad when he got home and this is what they said:

  First off, the Shriner's are a volunteer organization. The men raise the
  funds to keep the various hospitals up and running. It is possible that the
  VOLUNTEER who first looked at the application made a mistake. They said,
  call, talk with someone different from whom you first dealt with and ask why
  she was denied.

  Yes, you can make too much money for the Shriner's hospital (or that used to
  be the case they said, unless the administration has changed and they are
  not aware). These hospitals were started as charity hospitals for the needy
  who couldn't get help anywhere else. If they took everyone who applied those
  in dire straits could fall through the cracks.

  It is possible that there maxed money/employee wise at the facility you have
  applied to. There are only so many resources to go around and perhaps they
  can't take new people right now. Ask if there is a waiting list.

  It is possible that they don't offer the services that your daughter needs.
  Dad said that's the biggest reason for denying any child as there are only
  specific services they offer. Perhaps a spec surgery isn't one that the drs
  at that hospital perform being an example.

  Also, maybe the medical report from you dr wasn't "right" for getting her
  in.

  My folks asked if your daughter had been examined yet by someone at the
  Shriner's Hospital.

  And that if you were denied you should have been told WHY.

  Dad said if you'd contact me with your Name and ph # he would check into it
  for you. Before Sunday if possible as he's going to a meeting. Give as many
  specifics as you can.
  jwaite@xxxxxxxxxxxxx

  Michelle mom to Alex (15,partial trisomy 14 mosaic) and Molly (11)
  MichiganUSA


                    Building ___ooOOoo__ Rainbows
                         www.trisomyonline.org
                    Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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