[tri-med] Re: Short Philina Update

Yeah!
Thanks for posting a 'happy' note!

You certainly deserve the 'rest' !!!

Debbie, mom to Claire (t18)

On 11/21/05, Fawna <fawna33@xxxxxxxxxxxxxx> wrote:
> Everything is great!!!  She's been in her adult day program through
> United Cerebral Palsy now since the 1st of the month.  She loves it!
> They adore her!  And I feel fabulous, because it's basically just her
> high school program with better hours, and no IEP procress was
> required to get it.
>
> After 20 yrs of getting up at the crack of dawn (or more like before)
> to get her to her bus stop by 7AM at the very latest, we now have a
> leisurely morning routine, that even involves an option of sleeping in.
>
> It takes me 10-15 minutes to drive her over there at 10AM, and then
> I can run errands on the way back home.  Same for the afternoon
> pick-up at 3.  (And Regional Center is even going to reimburse me
> for driving her.  Oh and they also let me trade my self vender respite
> hours for 2 more Easter Seal camp weekends per year, so she's now
> up to the full 9 camps they offer...I usually only used those 12 hours
> 1 of the other 5 months any way, if that.)
>
> And come Spring & Summer UCP is going to provide her with their
> swimming lessons again too as part of her program that she lost when
> we move here.
>
> Life is good....
>
>
>
> Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
> Research Coordinator: Tracking Rare Incidence Syndromes
> (TRIS) project - We are currently enrolling all varieties of
> Trisomy 13 & 18, living & deceased, for the pilot phase.
> To include your child's data and help update the medical
> literature please see: http://web.coehs.siu.edu/Grants/TRIS/
> And to add a link for your Trisomy child's personal web page
> please see: http://www.livingwithtrisomy.org/
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


--
Time flies when your having rum.
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossib=
le!
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: