[tri-med] Re: Short Philina Update

So glad everything is coming up roses for Miss Philina and you too.

At 09:35 AM 22/11/2005, you wrote:
>Everything is great!!!  She's been in her adult day program through
>United Cerebral Palsy now since the 1st of the month.  She loves it!
>They adore her!  And I feel fabulous, because it's basically just her
>high school program with better hours, and no IEP procress was
>required to get it.
>
>After 20 yrs of getting up at the crack of dawn (or more like before)
>to get her to her bus stop by 7AM at the very latest, we now have a
>leisurely morning routine, that even involves an option of sleeping in.
>
>It takes me 10-15 minutes to drive her over there at 10AM, and then
>I can run errands on the way back home.  Same for the afternoon
>pick-up at 3.  (And Regional Center is even going to reimburse me
>for driving her.  Oh and they also let me trade my self vender respite
>hours for 2 more Easter Seal camp weekends per year, so she's now
>up to the full 9 camps they offer...I usually only used those 12 hours
>1 of the other 5 months any way, if that.)
>
>And come Spring & Summer UCP is going to provide her with their
>swimming lessons again too as part of her program that she lost when
>we move here.
>
>Life is good....
>
>
>
>Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
>Research Coordinator: Tracking Rare Incidence Syndromes
>(TRIS) project - We are currently enrolling all varieties of
>Trisomy 13 & 18, living & deceased, for the pilot phase.
>To include your child's data and help update the medical
>literature please see: http://web.coehs.siu.edu/Grants/TRIS/
>And to add a link for your Trisomy child's personal web page
>please see: http://www.livingwithtrisomy.org/
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>--
>No virus found in this incoming message.
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Jocelyn, Wife to Frank, Mother to Ian, Gillian and Susan
Grandmother (Nanna)  to Carly 18, Mathew 16, Ashleigh 15, Alex 13 and 
Tess 8 1/2 (T18)
Living at North Richmond, NSW Australia 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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