[tri-med] Re: Seeking a neurologist, cardiologist and ENT

Dr. Showalter?  Our orthopedist here in Boise's name is Dr. Showalter.  I 
wonder if there is any relation?

Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral palsy 
& spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19; 
and wife to Andrew; Boise, Idaho
----- Original Message ----- 
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, June 29, 2005 8:42 PM
Subject: [tri-med] Re: Seeking a neurologist, cardiologist and ENT


> we dont have those docs on a team for kam as she hasnt needed it.  BUT
> bill's company has become a major contributor to the denver children's
> hospital.  maybe dr carey can see if the drs here are a good fit for your
> needs.  we actually went to a benefit tonite for the research foundation 
> for
> the denver children's hospital and they are very reknown (sp?).
>
> bill of course is playing in a golf tourney to benefit them, hahaha.
> i dont want to be pushy but dr carey is great old friend with dr showalter
> who is on staff at childrens.  just let me know if we can help.
> jude, mom to derek-19, kelsey-17
> and kameron-8-full t18
> golden, colorado usa
> http://judewolpert.com
> http://home.comcast.net/~jfwolpert2
> NEW photoblog, please visit!
> www.judewolpert.com/v-web/b2
>
> ----- Original Message ----- 
> From: "Karen" <karens@xxxxxxxxxxxxxxxx>
> To: "Tri-Med" <tri-med@xxxxxxxxxxxxx>
> Sent: Wednesday, June 29, 2005 6:03 PM
> Subject: [tri-med] Seeking a neurologist, cardiologist and ENT
>
>
>> Last night I had the wondrous experience of watching Alex in his stage
>> production. It was an incredibly moving experience but also in its own 
>> way
>> quite distressing.
>> For the first time I was able to see him objectively and it was really
>> quite obvious to me and to the friends that I had with me that the Master
>> has deteriorated far more than I / we had realised, probably because I am
>> too close on a day to day basis.
>>
>> I knew that his hearing and co-ordination had deteriorated but last night
>> I was really able to see that he isnt moving the left side of his face at
>> all and that the difference between left and right is getting a LOT
>> greater. As a lay person its quite obvious that whatever it is thats 
>> going
>> on - and everyones best guess (that is Alex's doctors) is that its a
>> tumour, has progressed.
>>
>> I will give the doctors here another push and a shove but fully expect
>> them to tell me that the risks of an MRI are too high given his quality 
>> of
>> life and prognosis. Then they will throw in the wait and cost etc etc. I
>> disagree of course but they put that down to me being a biased parent. I
>> am well aware of the risks, don't get me wrong. But I also fully believe
>> that with proper care that we can safely find out whats going on and with
>> the Gods of the universe willing that it can be treated. I also see that
>> Alex has a brilliant quality of life and that the trisomy diagnosis 
>> should
>> not enter into the QOL discussion.
>>
>> If need be I will bring him back to the states. My own health, for this
>> type of escapade isnt brilliant but I think that I can do it - and that I
>> will be able to get a friend to come with me to help. I think raising the
>> money wont be so hard this time because I am a little more assertive.
>>
>> So in preparation and in case its needed I would like to hook up with
>> doctors of a team that we need - it may just be discussion / second
>> opinion if the doctors here will go ahead, but it may be finding a team
>> that is willing to treat if it comes to that.
>>
>> At the very least we are going to need a neurologist, cardiologist,
>> anaethetist and ENT to work together just to get the MRI done. What if
>> anything shows up from that will lead us to the next step.
>>
>> So my request is if anyone on the list already has the above doctors who
>> work well together? And whether they might be willing to liase via email.
>> I will talk with Dr Carey as well but if it gets to that stage the more
>> input the better.
>>
>> Thanks in Advance
>> "We come to love not by finding a perfect person, but by learning to see
>> an imperfect person perfectly"
>> Sam Keen
>>
>> Keep Looking For Rainbows!!
>>   _--_|\
>> /Karen \
>> \ _.--._ /
>>          v Karen, Mum to Alex (10 years, T-18 Mosaic)
>> http://members.optushome.com.au/karens
>>
>>                  Building ___ooOOoo__ Rainbows
>>                       www.trisomyonline.org
>>                  Families Helping Families On-line
>>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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