>We share the same ENT, who is a gem,
Absolutely!
>but the cardio who has been Dom's guardian since
>he was two years old is not as well thought of by
>Fawna.
Yes, but Dr Grossfeld is Philina's newest cardio, and
he would at least know who Dr Carey is, since they were
both in/speakers for the professional lectures at the
San Antonio Conference. And he HAS a special interest
in rare chromosomal cardiac problems.
>Same with the neurologist.
There are 2, maybe 3 in that whole huge office, that I'd
even consider for the Master, but as you're aware, Dom's
ISN'T one of them!
But why not go for the best of the best? Alex IS still
young enough you know!
>The guy has taken a personal interest in Dom, but he
>is also really old.
Yea...nuff said!
>Dr. Marilyn Jones was the person who coordinated Dom's
>care in the beginning and that might be another avenue
>to persue. She is also a friend of Dr. Carey's.
Now there's a blast from the past. We haven't run into
her in the back hallways for years now. Remember her
office was right next to medical records...I actually
liked her, she just wasn't really any help to us beyond
diagnosis.
Fawna, mom to Philina 22yrs (PT6p & Moya Moya)
Research coordinator for the TRIS Project
http://home.mindspring.com/~fawna33/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line