----- Original Message -----
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
> I knew that his hearing and co-ordination had deteriorated but last night
I was really able to see that he isnt moving the left side of his face at
all and that the difference between left and right is getting a LOT greater.
As a lay person its quite obvious that whatever it is thats going on >- and
everyones best guess (that is Alex's doctors) is that its a tumour, has
progressed.
{{{{{{Karen}}}}}}}}
>> If need be I will bring him back to the states.
> So in preparation and in case its needed I would like to hook up with
doctors of a team that we need - it may just be discussion / second opinion
if the doctors here will go ahead, but it >may be finding a team that is
willing to treat if it comes to that.
> At the very least we are going to need a neurologist, cardiologist,
anaethetist and ENT to work together just to get the MRI done.
No suggestions from our neck of the woods as we don't deal with those
specialties for Alex.
Have you worked out how to get Alex's Visa without his Dad's signature??? I
know that a few years ago that was a BIG problem for you to even consider
leaving the country.
If anyone can figure out how to deal with the situation it is YOU!
Michelle mom to Alex (18, partial trisomy 14 mosaic) and Molly (14)
MichiganUSA
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line