[tri-med] Re: Seeking Help

----- Original Message ----- 
From: "Meierlaw" <meierlaw@xxxxxxxxxxxx>
> My name is Aimee and I am new to the list.  My beautiful Trisomy 18
daughter, Rachel, is 33 months old.  Rachel is a "full" T-18, but she
presents as mosaic and is considered "mild and high functioning";
nevertheless, she is still significantly delayed in her >development.

Hi and welcome Aimee!

Cracks me up-- "presented as mosaic". The drs just can't stand it when a
full trisomy is doing well and tries to down play it as something it's not.
There are some fulls doing better than mosaics (including living longer and
developing further). There is no "better" trisomy--full vs mosaic that's a
guarantee of any better outcome. Yes, it does work out that way sometimes
but others........not.

Sorry but I don't have an experience on the gagging issue. Just wanted to
say howdy!


Michelle mom to Alex (16, partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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