[tri-med] Re: Seeking Help

Welcome to the list Aimee and the gagging Rachel! What took you so long?

I am sure you will get a lot of good info here as everyone LOVES to 
talk about gut problems, poop, gagging and the like.

I am looking forward to hearing more about Rachel.

Where in Cinti to do you live? My husband grew up in Madeira, and we 
lived in Cinti for a while. Still have lots of friends there...

Mimi (wife to Doug, Mommy to Reilly 8, Keegan 6, and Tierney T18 8 
months)
Chicago
On Jan 23, 2004, at 1:18 PM, Meierlaw wrote:

> Hi, Everyone:
> My name is Aimee and I am new to the list.  My beautiful Trisomy 18 
> daughter, Rachel, is 33 months old.  Rachel is a "full" T-18, but she 
> presents as mosaic and is considered "mild and high functioning"; 
> nevertheless, she is still significantly delayed in her development.  
> My husband and I absolutely adore her.
>
> The issue I am writing about is Rachel's frequent gagging and throwing 
> up.  There doesn't seem to be a pattern to it, although we think there 
> might be some correlation between the gagging and bowel movements 
> because she often has this problem within hours before or after a 
> bowel movement.  In addition, our pedi advises us that Rachel has 
> large tonsils and that they might be triggering the gag reflex if she 
> moves her head in a sudden or awkward position. Rachel has mild 
> sensory issues and likes to bang her head on the floor and this can 
> precipitate gagging, also.
>
> My question to the group is whether or not anyone else has a child 
> with this problem and what you do about it?  We have taken Rachel to a 
> gastroenterologist and had an Upper GI done - which showed her anatomy 
> to be normal.  We are also investigating the possibility of Reflux.  I 
> have an appointment with an ENT to discuss the tonsil theory.  Rachel 
> can be perfectly fine and then, all-of-a-sudden, start gagging.  She 
> will either recover, dry-heave for awhile or throw up.  It's pitiful 
> to watch her struggle this way.  We can often go for a week without 
> any throwing up, but we can also have four out of seven days with 
> problems.
>
> Any suggestions or experience you have to share would be most welcome. 
>  We put Rachel on Miralax about a year or more ago to help with 
> constipation and that seemed to help a lot, but it did not eliminate 
> the gagging.  This problem has been going on for two years or so and 
> we can't take it anymore.  We are seeking help and answers.
>
> Many thanks!
>
> Aimee in Cincinnati
> (wife of Bob; mother to Rachel 2-1/2, Jillian 1-1/2 and Ian 5-1/2 
> months)
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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