[tri-med] Re: SOFT Conference Assistance

> -----Original Message-----
>>From: Corey & Dana <coreydana@xxxxxxxxxxx>
>
>>With the conclusion of the 2006 SOFT conference in Chicago and the buzz
>>about the 2007 SOFT conference in Salt Lake City, I just wanted to let
>>everyone know of Noah's Never Ending Rainbow's continued commitment in
>>providing family assistance to SOFT conferences!
>

I already told ya'll...but I'm doing it again :o) I just started by emailing 
Dana...she told me all I needed to do was to write a letter detailing why we 
wanted to go...what we hoped to gain, etc...

I wrote a letter....one of my better ones...if I do say so myself...and to 
add icing on the cake I included a picture of our little charmer...never 
hurts...although I don't think it was necessary with Dana/Noah's....still I 
thought it would be nice if they (the board) could put a chubby little moon 
face with the request :o)

I don't think it took much more than that??? Dana wrote to me and just like 
Chris...the $ they gave us paid for our hotel room :o) In short...we 
wouldn't have been able to come without them :O) Since we've been to UT 
twice...I'm not sure I can justify it next year??? Might be better to let 
the $ go to families who haven't ever been?? BUT...when it's in CO...rest 
assured I'll be writing Noah's again in the hope they will help us again :o) 
I DO think it's a good idea not to put all your eggs in the same basket 
though...Noah's can't help everyone afterall...

I can't improve on Chris' message below...

>>Chris Wrote:
> I'd encourage you to ask for help....the conferences are well worth it. > 
> Smiles,

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to 
Nick (15 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy 
Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11 
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Pooh, Elmo, & food 
in general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper 
the Wonder Dog...our 9 ? year old yellow lab adopted from FL Lab Rescue 
12/13/02 :o)
Please visit the webpage my wonderful friend Karen made for me on our 
trisomy listserv at:
http://www.trisomyonline.org/victor.htm
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our Trooper on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"We love the things we love for what they are"
Robert Frost 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: