[tri-med] Re: Ronald McDonald houses - Jude

Jude - and anyone else who may have experience - was your Ronald McDonald 
house a nice facilty?  We stayed in one for one night over a  year ago when 
Caroline was hospitalized.  It was nice in the fact that it was very cheap, 
but the room wasn't that great.  It was very old and not that comfortable. 
The house was also about 5 miles from the hospital.  They had a shuttle, but 
it wasn't that convenient for quick back and forths to see her.

I know that they are keeping the the rooms very affordable and I don't mean 
to sound snobbish, and I definitely appreciate their purpose and know they 
are a wonderful resource for parents and families with long term hospital 
stays.  I also definitely know that when you are facing serious medical 
issues with your child, where you sleep is the least of your worries.  The 
room was definitely much nicer than the vinyl fold-out chair in the hospital 
room.  And, I definitely would stay there again if we needed a place for 
more than one night.  I  was just curious if the one we stayed at is 
typical.  There are a few different ones in our area and maybe I will try 
another one if some are better than others.

Irene
(Christina -3  1/2 y.o,  Caroline - 2 yo with partial trisomy 17p, Kallie 
Marie, born 6/23/05)
http://www.babiesonline.com/babies/c/carolinerochelle
----- Original Message ----- 
From: "Jude Wolpert" <jfwolpert2@xxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Sunday, July 31, 2005 9:07 PM
Subject: [tri-med] Re: New problem...fluid in chest cavity


> is there a ronald mcdonald house close to her hospital?  they have set ups
> for famililies.  i stayed in one for 14 days one time with kam in the
> hospital and it was great.
> jude, mom to derek-19, kelsey-17
> and kameron-8-full t18
> golden, colorado usa
> http://judewolpert.com
> http://home.comcast.net/~jfwolpert2
> NEW photoblog, please visit!
> www.judewolpert.com/v-web/b2
>
> ----- Original Message ----- 
> From: <irene67@xxxxxxxxxxxx>
>>  I am assuming Caroline will be hospitalized for this, at least for
>> the testing. I can't imagine how we are going to handle this. I
>> have a newborn, I am breastfeeding, so I can't leave Kallie for any
>> length of time (the hospital is 2 hrs from home). Thank GOD my
>> husband is a teacher and is off for the summer so he has the time.
>> However, I can't just sit back and let him take over. I need to be
>> with my sweetie as well. I also have obviously, as a stay at home
>> mom, been much more in charge of Caroline's care and there are some
>> things he may not be as knowledgable about. I need to hear and see
>> what is going on myself! I also know we can't bring Kallie into a
>> hospital room, so that makes things tough as well.
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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