[tri-med] Retina question

>>From: Melanie <melanie@xxxxxxxxxxxxxxxxxxxx>
>>Does  anyone have a child with retinoblastoma or other retinal 
abnormalities?  <<




Melanie,
 
I'm not sure if the diagnosis was accurate, but as an infant, Gabby was  
diagnosed with retinopathy _pigmentosa_ 
(http://aolsearch.aol.com/aol/redir?src=PTL&requestId=82610dfd9112ccb4&userQuery=retinopathy+pigmentosa&clickedItemURN=we
boffers?invocationType=wo_more&query=retinopathy+pigmentosa&moduleId=weboffers
_right.jsp.M&obUrl=null&obQuery=null&clickedItemDescription=slMoreWebOffers) 
.  The physician that gave this  diagnoses was a fellow with no personality to 
speak of.  He gave no  information about this disorder, no prognosis. (When I 
asked what this meant, he  would only say that he could see black spots on 
her retina)   As he  left the room after his diagnoses, he tripped over Gabby's 
diaper  bag. (Maybe he couldn't see too well).  So far, Gabby has no apparent  
difficulty with her vision.  He eyes are sensitive to bright light  thought. 
   

Linda Arthurs  MawMaw to Gabby (Trisomy 14- Mosaic) July 6, 2002 - 
Thomasville, NC USA  _http://hometown.aol.com/larthk/Arthurshomepageindex.html_ 
(http://hometown.aol.com/larthk/Arthurshomepageindex.html) 





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