[tri-med] Re: Request for help, please

Nan, this completely belongs on this thread.  What if they would have listened? 
 If the kids would have listened to the doctor, Kristina would not have been 
here.  Kind of scary if that same doctor is telling other people the same thing 
and they are terminating.  Congratulations on Kristina!
 
Kim Ihlenfeldt, husband Kerry (complex balanced translocation 9, 15, and 18 
chromosomes), son Cameron 9 (same genetics as Dad), Cayden T-18 (12-16-02 to 
01-16-03), and Candace 2 (Partial Trisomy 18 and Partial Trisomy 15)
> From: NanlorW@xxxxxxx> Date: Fri, 19 Oct 2007 00:50:01 -0400> Subject: 
> [tri-med] Re: Request for help, please> To: tri-med@xxxxxxxxxxxxx> > In a 
> message dated 10/18/07 8:16:42 PM, kimihlenfeldt@xxxxxxxxxxx writes:> > > > I 
> am so sick and tired of the doctors thinking they know everything and > > 
> that they think they can choose who is "worth" saving.> > > > A few months 
> ago I think I posted to the list about my son and his wife and > the baby 
> they were expecting. An ultrasound about about 20 weeks showed some > growth 
> abnormalities and the doc that did the ultrasound told them that he > 
> suspected a chromosome abnormality, not Down Syndrome. He even discussed > 
> amnio/termination with them. Now some would think that my son, Chris, being 
> three years > older than Dom might have an idea of what the doc was talking 
> about, but I am > certain he did not. Besides, at our house, having something 
> abnormal was > normal. But it about stopped my heart. The kids did not at all 
> consider terminating > and they did not do any research other than to talk to 
> Maria's regular OB who > did not think there were any serious problems. > 
> They went back for a second u/s and it was a different doc who thought > 
> everything looked ok, except that one of the baby's kidneys seemed small. I 
> just > want anyone that remembers that far back to know, they had a 
> beautiful, healthy > little girl, Kristina Yvette on September 24. She was 7 
> lbs, 10 oz and 20 > inches long. When I heard her crying on my cell phone 
> just a few minutes after she > was born, I breathed a giant sigh of relief. 
> They took her last week to the > pediatric urologist and her right kidney did 
> not fully develop. He told them > that her left kidney was perfectly healthy 
> and she would be one of those people > who goes through life with just one 
> kidney. He did not forsee any problems. > What appeared to be too small was 
> probably a mistake on due dates. Maria said > about a week later than what 
> the docs said and Kristina was born on the date that > Maria thought she 
> would be. I don't know that this post belongs on this > thread, other than if 
> they had gone along with the first doc, the outcome could > have been very 
> different.> > > > Nan> mom to:> Dom, 9/16/83, Tri 18 mosaic and Bipolar 
> Disorder.> Ali, 6/12/83, Autism, Tourette Syndrome, ADHD> > > > 
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> Families On-line> 
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