[tri-med] Re: Request for help, please

I think this is just horrible.  (Let me vent for a moment, please)  Our kids 
are worth just as much, if not more, than the average person!!!  This gets me 
so irate.  I am so sick and tired of the doctors thinking they know everything 
and that they think they can choose who is "worth" saving.  I am sorry, but 
they are not God.  (Not to offend anyone who is not religious)  If there is 
anything I can do here in the U.S., I am in Iowa, I will scream from the top of 
my lungs if I have to.  Tell me what to do.  This is unreal.  I will stand up 
and fight.  I am very vocal locally about how kids with "lethal genetic 
disorders" are treated.  I will talk and tell anyone, and I mean anyone, who 
will listen what I think about doctors behaving this way.  Again, tell me what 
to do and I will do it.  Tell me who to contact and I will contact them.  I 
will do whatever I can to help and get this out.
 
Kim Ihlenfeldt, husband Kerry (complex balanced translocation 9, 15, and 18 
chromosomes), son Cameron 9 (same genetics as Dad), Cayden T-18 (12-16-02 to 
01-16-03), and Candace 2 (Partial Trisomy 18 and Partial Trisomy 15)
> From: anon1930@xxxxxxxxxxxxx> Date: Fri, 19 Oct 2007 10:54:39 +1000> To: 
> tri-Med@xxxxxxxxxxxxx> Subject: [tri-med] Re: Request for help, please> > 
> ----- Original Message ----- > From: "Barbara Farlow" > >I understand that 
> you have a social health care system in Austrailia > also. In Canada, we have 
> grand policies and procedures but no > accountability.>>> > Barbara,> Perhaps 
> I can lend a hand in explaining this. I wish I was in a > position to help 
> you with this, but as I have explained, I can't at > the moment.> > In all 
> things there is a system - and the medical system is no > exception. 
> Unfortunately the hospital system is intimatey entwined in > the political 
> system, especially in those countries where their is > public health.> > 
> Hospitals have procedures and policies in place that are supposed to > be 
> adhered to. If they aren't the first step is an internal review, > which 
> Barbara has done. If the hospital finds a problem (IF being the > operative 
> word as its internal) about all they will do is either > change the policiy 
> or introduce education. > > The next step is to take it to the monitoring 
> body, which I > understand Canada has none. Here in Australia we have the 
> Health Care > Complaints system in all states for most things and for others 
> we > have an Ombudsmen. But even so they are severely limited in what > 
> action they can take.> > If there is criminal action you can also take it to 
> the police, but > they are limited because they are advised by other doctors. 
> It is > VERY hard to get one docter to speak out against another because if > 
> they do they face sanctions within their own profession, in short > they will 
> never work again. If they do speak out its usually due to > media pressure or 
> to speak out against the system, very rarely will > they condemn another 
> health professionals action. In Barbara's case I > think you will find that 
> its worse because what happened to Annie > happens more frequently, and under 
> the blessings (though covert) of > the doctor more often than we care to 
> admit.> > In the case of death the police or an individual may refer it to 
> the > coroner, as Barbara has done. But if he makes no ruling of criminal > 
> action there is nothing that the police can do.> > All that Barbara has left 
> is to take the fight to her local > politician and the media, and that is 
> where she is seeking your help. > Barbara can not take legal action herself.> 
> > Only the crown can lay criminal charges and as the coroner has found > no 
> criminal action in Annies death they wont. > > And there is absolutely no 
> claim for civil action where our children > are concerned. To make a civil 
> case there has to be a loss. Because > our children have a shortened life 
> span and because they will > probably never earn an income there is no 
> economic loss to make a > claim for damages there. The loss of a human life 
> and the emotional > consequences of their death is not enough as far as our 
> children are > concerned because the defenders will claim that Barbara was 
> saved the > pain of raising a severely disabled child and only hastened the > 
> inevitable.> > As I said Barbara's only recourse now is to urge everyone to 
> take > this to their politicians and the media. You may not be in Canada but 
> > thats no reason that you can't help lay seige on them for her. As a > list 
> we have done it before (remember Chromosome Thingy).> > Anon (for personal 
> reasons only)> > Sign up today for your Free E-mail at: 
> http://www.canoe.ca/CanoeMail> Building ___ooOOoo__ Rainbows> 
> www.trisomyonline.org> Families Helping Families On-line> 
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