[tri-med] Re: Reflux meds?

----- Original Message -----
From: "Jennifer Mourtada"
> Has anyone ever had an experience with Bethanechol for reflux. It seemed
to
> make my daughters reflux worse and she cried after taking it almost like
she
> had colic.

Hi Jenny and welcome!!!
I also had never heard of Bethanechol so I had a quick look at www.rx.com

The main reason that Bethanechol is prescribed is to empty the bladder. So I
am not sure why your GI doctor is prescribing it for reflux - particularly
as one of the more common side effects is vomiting and abdominal
discomfort?????

Of course drugs always have other uses than what they are most commonly used
for (eg Alex takes a blood pressure medication to control his body
temperature - but you wont find that listed in any medication handbook)

Can you check with your pediatrician or get a second opinion??

> Also what meds do your kids take for reflux? Joumana is currently taking
> prilosec but it doesn't work completely.

Alex took zantac as a baby - but I could see no difference so stopped it and
I just used thickened foods. However Alex suffered from silent reflux. It
wasnt until he had a pH study that we realised that he had reflux and an
endoscopy showed that it was causing a lot of damage. As a result he had a
Nissen fundoplication done at 14 months. He hasnt vomited since (not even
when he was sick). Even now, over 6 years later nothing is getting past that
fundo!!!! Though I admit has burped a couple of times this year (teeny weeny
ones much to his disgust - he is at an age where he would like to do those
gross noisy burps that little boys do)

> Another question, Has anyone ever had a swallow study done? We've had an
> upper GI study but now we are debating about the swallow study.

Alex has had many, many, many swallow studies done. As an OT I was paranoid
about his swallow and possible aspiration. Before I would try anything with
his eating he had a swallow study done. And I was real, real fussy about who
did it and how (eg I wouldnt allow anyone who had done them before to do it
and I absolutely refused to allow anyone to try and do a swallow study with
him laying down.)

They are a pain in the butt with a child who wont eat (Alex) and often
distressing for the child but not painful.

Hope is itself a species of happiness, and, perhaps, the chief happiness
which this world affords.
-- Samuel Johnson

Keep Looking for Rainbows!!!
Karen, Mum to Alex (7, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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