[tri-med] Re: Re; Nestle Additions/Weight Gain-Holly

----- Original Message -----
From: "Paul Verheyen" <verheyen@xxxxxxxxxxx>
  Cody will be 8 years old on Jan
> 6th, 2004.  They told us he would NEVER see his first birthday, walk or
> talk.  He is non-verbal but uses sign lanuage and a black hawk and
> communication book.  He does not walk he runs!!!!

Wow! Sounds as if he's doing well. Any medical issues?

 >Cody is non-mosiac Trisomy 9

There are some tri-9's around. Not sure if any/some are on the med list or
on the family list. Have you hooked up with other tri-9 folks?

>.  I
> would love to meet all of you one day.

The 3 of us have met 3 times now. Once with children in tow and the others
without. Except for Loren's Keren-- she's a non-mobile, quiet, napper who
doesn't mind that we jabber for hours.  :0)  The other 4 children (2 mine
and 2 for Jennifer) are not so easy to visit around. lol
Keep an ear to the ground for the next coffee klatch! btw~ are you a SAHM?
Jennifer works but is available some early afternoons and Loren and I are of
the SAHM variety.

Michelle mom to Alex (16,partial trisomy 14 mosaic) and Molly (13)
MichiganUSA


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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