[tri-med] Re: Re; Nestle Additions/Weight Gain-Holly

Hello I was just wondering where in Michigan you live.  I have a little guy
with Trisomy 9 and live in Rochester Hills MI


----- Original Message ----- 
From: "Michelle Waite" <jwaite@xxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, December 10, 2003 4:59 PM
Subject: [tri-med] Re: Re; Nestle Additions/Weight Gain-Holly


>
> ----- Original Message -----
> From: "Pamela Padgett" <padgettcastle@xxxxxxxxx>
> >Guilt does rear its ugly head, I think its a mom thing, even more so for
> Genevieve >and the chromosome issue. Should I? Shouldn't I?
>
> {{{{{{{{{Pamela}}}}}}
>
> I agree with you, I'm the same way. There have been times I've felt like a
> dog chasing it's tail in search of something to tell me what I should do.
>
> So many of us struggle/have struggled with the food issue. Alex would have
> died if we'd not been able to spend the hours and hours per day on his
> feeding. For the first months of his life we'd do a happy when getting 1-2
> oz into him in an hour.
>
> Unlike you we were never offered alternative, it never came up. Anywhere
at
> any time. So we did what we HAD to do.
>
> As a result Alex has always been an oral eater and a very sparse one.
Until
> the GHT (growth hormone therapy). At that time he began to occasionally
ASK
> for food--previously unheard of. Even now that he's done with the GHT his
> eating remains better than before.
>
> However, he only ate "soft" foods until he was in his later toddler
years.He
> was approx 5 before he really began to eat table meats.
>
> Hang in there and TRY not to stress too much. Easier said then done.  :0)
>
> Michelle mom to Alex (16,partial trisomy 14 mosaic) and Molly (12)
> MichiganUSA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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