[tri-med] Re: Raising awareness for trisomy 13/18
- From: "T18 Mom" <t18mom@xxxxxxx>
- To: <tri-med@xxxxxxxxxxxxx>
- Date: Mon, 25 Feb 2008 10:42:23 -0800
WOW! What an awesome and dedicated man!
Thanks for sharing, Barb!
Ruth, wife to Rudy, mom to Brendon (23), Scott (20), Joshua (16), Matthew
(09/13/01-10/24/06), Rudy (3 1/2) & Alyssa (18 mo.)
http://members.cox.net/t18mom/Matthew%20Web.shtml
Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved. ~Hellen Keller
-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] On
Behalf Of Barbara Farlow
Sent: Saturday, February 23, 2008 9:36 AM
To: tri med lists; triwings
Subject: [tri-med] Raising awareness for trisomy 13/18
Hello all,
There is an incredible man named Michael Hennessey who is planning to do 18
Ironmen races in 2008 around the globe to raise awareness for children's
charities and specifically for trisomy 13/18.
He has a blog and in the page below, he was kind enough to mention Annie's
site on livingwithtrisomy13
http://www.ironmanforkids.com/?p=37
It is such an opportunity that someone would choose a rare syndrome for
which so many assume automatically to be lethal as his cause.
I wonder how/if we could support him and make his world record challenge
better known?
Barb Annie's mom 05/25/05-08/12/05
_________________________________________________________________
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
- References:
- [tri-med] Raising awareness for trisomy 13/18
- From: Barbara Farlow
Other related posts:
- » [tri-med] Raising awareness for trisomy 13/18
- » [tri-med] Re: Raising awareness for trisomy 13/18
- [tri-med] Raising awareness for trisomy 13/18
- From: Barbara Farlow