[tri-med] Raising awareness for trisomy 13/18

From: Barbara Farlow <b_farlow@xxxxxxxxxxx>
To: tri med lists <tri-med@xxxxxxxxxxxxx>, triwings <tri-wings@xxxxxxxxxxxxx>
Date: Sat, 23 Feb 2008 17:35:44 +0000





Hello all,

There is an incredible man named Michael Hennessey who is planning to do 18 
Ironmen races in 2008 around the globe to raise awareness for children's 
charities and specifically for trisomy 13/18.

He has a blog and in the page below, he was kind enough to mention Annie's site 
on livingwithtrisomy13

 http://www.ironmanforkids.com/?p=37

It is such an opportunity that someone would choose a rare syndrome for which 
so many assume automatically to be lethal as his cause.

I wonder how/if we could support him and make his world record challenge better 
known? 

Barb  Annie's mom  05/25/05-08/12/05


_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Follow-Ups:

[tri-med] Re: Raising awareness for trisomy 13/18
From: T18 Mom

[tri-med] Raising awareness for trisomy 13/18

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