[tri-med] Re: Quick Aussie Alex Update

Our cardiologist.....Dr. JR Bockoven in Dayton Ohio has referred a T18 kid
who was 4 mos. old (I think that she's 7 now) for heart surgery.  Since
Dayton doesn't do pediatric heart surgery, hers was done in Cincinnati.  We
did consult with the same surgeons before & after Mari's heart cath..  They
would have performed her surgery if it weren't for the pulmonary
hypertension.  So, Cinncinnati's might be an option for T18 kids too.

(Dr. Bockoven told us that he would search the whole country to find someone
to do surgery on Mari, if that's what we wanted.  He has offered to check in
on other T18 kids in Columbus, OH.)

Chris Logan
for my husband Pat, Dalton age 11, Darby age 8, McKensie age 7,
and Mari age 22 mos. (full T18) too!
Tipp City, Ohio
http://photos.yahoo.com/MissTippCity
http://home.earthlink.net/~loganfamily/index.html

> { He admitted to my face that he would never do heart
> surgery on a child with T-18, that it had never been done in this country
> (true at that point) and he would not set a precedent.}
> The doctor (Dr. Suylaman) that helped us with the conference last year is
a cardiologist and he has done surgery on patients from other countries who
could not have heart surgery in their own country.  He was specifically
talking about T-21 that couldn't get surgery in their country!  So sad.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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