Karen,
> Alex finally seems to have regained everything from the major > crash the
> other week. He is at least talking again (he
> reverted to signing, his "first" language) We still have some > memory holes
> but they are coming back.
I swear that sounds like Philina's Moya Moya.....
I can't explain it, but since the regeneration after the codings
she can say "d" sounds again. Remember she hadn't been able to say them since
we removed her adnoides at age 4.
> Neurologist - after all the hype and hope that this new
> neurologist would be able to shed some light - it was a TOTAL > AND EXPENSIVE
> WASTE OF TIME.
Can I ever relate to that statement. I didn't even get the MRA report from
ours.
> So we are back to square one on that one. I will give Prof one > more shot at
> this I think - but I will also start writing to
> Dr Axelrod again and start considering seriously planning
> another trip to the US to meet up with her.(NY here we come??)
We're going back too, just on account of because of, but lord only knows why.
Do you promise on that visit to the US?
> Unresolved issues still - big one is still this "muddled head" > and we NEED
> that MRI. Have decided that we WILL get it and
> have put in a call to the Health Care Complaints Commission to > speak with a
> PSO - no matter what excuse they try, waiting
> list or the T-18 they will be able to get that quashed.
An MRI didn't find anything to explain Philina's. The first one just
substantiated there was some brain damage in her balance center. The 2nd one
12 years later varified that it was still there. The answers came from an MRA.
Though this newest neurologist has even verbally invalidated that finding.
Fawna, mom of Thom 24, Lara 22, Philina 20 (PT6p & Moya Moya Syndrome), wife of
Doug, 7 =^..^='s, 3 llamas, 2 Tortoises, 1 Turtle, and a partridge in a pear
tree.....
Building ___ooOOoo__ Rainbows
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