[tri-med] Re: Questions about weight/Fawna

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 =0D
Hi guys,=0D
I read alot of information on all that is written on this tri-med list an=
d
am very interested.=0D
This lot  i read about weight gain i agree on.   my son Kye has t14
mosaicism and also finds it hard to GAIN weight but being on pedisure has
mad a huge difference.  we use the powder form and put the scoops in his
milk to  add extra calories.  As his condition is very rare (same as hann=
ah
s i have been reading about) it is very hard to know what  to do, but as
mums we keep learning and trying different ideas.=0D
 =0D
Wife to boris and mum to trent(20) tyrone(19) Kye(3yrs last weekend with
t14) and a beautiful daughter zakah 16months and let us not forget 4 bord=
er
collie dogs=0D
Busy mum always Tanya=0D
-------Original Message-------=0D
 =0D
From: McCormick Holly=0D
Date: 22/11/2006 1:14:58 AM=0D
To: tri-med@xxxxxxxxxxxxx=0D
Subject: [tri-med] Re: Questions about weight/Fawna=0D
 =0D
>Thats a generalisation rather than fact. Its a bit like saying that all=0D
>children with a chromosomal anomaly are delayed. A lot are but its also=0D
>variable depending on the person, genes, type of anomaly etc.=0D
 =0D
 =0D
I would definitely agree that that is a generalization that isn't always
correct.  Morgan may have started out small, but by 4 mos. (we have photo=
s
in an album where he goes from one pic scrawny to the next one having a b=
ig
balloony face) he was a chubby guy, very roly poly.  As it goes with many
toddlers he slimmed down for awhile, the dr. wanted more calories in him.=
=20
But now he is on a diet.  He gains weight so easily, but we have had him =
at
the same weight now (73 lbs.) for about 3 mos.  We don't want him gaining
more at the moment, but we don't want him to lose anything.  We went from=
 4
cans of pediasure a day plus anything he wanted to eat orally (he had gai=
ned
10 lbs. in less than 6 mos., popped a Bard button right out due to that
weight gain) to 2 cans of pediasure and more oral foods.=0D
 =0D
 =0D
"Life is not easy for any of us. But what of that? We must have persevera=
nce
and confidence in ourselves." --Marie Curie...=0D
 =0D
Holly --  wife of Mike, mom of Morgan (9 yrs.), partial t18q & partial
monosomy 9p (unbalanced translocation)=0D
mommy to Clyde (gray kitty) & Cleopatra (white kitten)=0D
Des Moines, IA=0D
 =0D
 =0D
 =0D
 =0D
                  Building ___ooOOoo__ Rainbows=0D
                       www.trisomyonline.org=0D
                  Families Helping Families On-line=0D
 =0D
 =0D
 =0D
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=2E


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