[tri-med] Re: Questions about weight/Fawna

It was interesting reading about the weight gain issues. My son who has t8 
mosiac and is 28 months does not gain weight very easily and like most it is a 
constant battle of high calorie food and with his dietician who tells me really 
helpful things when she reads his food diary like 'he needs more selenium in 
his diet'!!!!! He was tube fed until he was 5 months old and then we moved to 
oral feeding with extreme caution due to his reflux. He now weighs 18lbs11oz 
and on last weighing gained half an ounce in 2 months and yes I get that look 
when I tell people how old he is, I think they must think I starve him.
About the genetic link between fast metabolism and an extra chromosome this is 
something I am trying to find more info about (along with millions of other 
things) so if any of you have any journal references or other info that would 
be handy.
Thaks Katy. son has t8m

----- Original Message ----
From: McCormick Holly <hmmmcormick@xxxxxxxxxxxxx>
To: tri-med@xxxxxxxxxxxxx
Sent: Tuesday, 21 November, 2006 3:14:52 PM
Subject: [tri-med] Re: Questions about weight/Fawna

>Thats a generalisation rather than fact. Its a bit like saying that all 
>children with a chromosomal anomaly are delayed. A lot are but its also 
>variable depending on the person, genes, type of anomaly etc.
 

I would definitely agree that that is a generalization that isn't always 
correct.  Morgan may have started out small, but by 4 mos. (we have photos in 
an album where he goes from one pic scrawny to the next one having a big 
balloony face) he was a chubby guy, very roly poly.  As it goes with many 
toddlers he slimmed down for awhile, the dr. wanted more calories in him.  But 
now he is on a diet.  He gains weight so easily, but we have had him at the 
same weight now (73 lbs.) for about 3 mos.  We don't want him gaining more at 
the moment, but we don't want him to lose anything.  We went from 4 cans of 
pediasure a day plus anything he wanted to eat orally (he had gained 10 lbs. in 
less than 6 mos., popped a Bard button right out due to that weight gain) to 2 
cans of pediasure and more oral foods. 


"Life is not easy for any of us. But what of that? We must have perseverance 
and confidence in ourselves." --Marie Curie... 

Holly --  wife of Mike, mom of Morgan (9 yrs.), partial t18q & partial monosomy 
9p (unbalanced translocation)
mommy to Clyde (gray kitty) & Cleopatra (white kitten)
Des Moines, IA




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