[tri-med] Re: Questions about weight

What confuses me is that J lost two pounds when he was tube fed at night and 
now that he's eating more orally, his weight is stable.  He hasn't gained 
anything, but hasn't lost either.
   
  Wendi, mom to Jackson, trisomy 4p, inverted duplication
   
  
Janet King <jlvking@xxxxxxxxxxxxxxxxxxx> wrote:
  >> Jackson had a GI visit today, still no weight gain, he's actually
down 2 ounces. He >>had a Metabolic Cart test done. Does anyone have
any experience with this? Did it >>tell you anything about your child's
weight gain? They said we won't have the results >>for 2 weeks. He's
still in the 3rd percentile for height, so at least that's stable.

>> Also, J has been taking 7 oz bottles without problem and getting his
calorie allotment >>in before bed, so we haven't been tubing him at
night. The nutritionist said she feels >>that J may be expending too
many calories just in the act of eating, so they want me to >>only allow
him to eat 3 oz of the bottle orally and then bolus the rest. Does this
make >>sense to anyone? He's finishing the bottles in less than 15
minutes and I just don't see >>how he could burn that many calories in
such a short time. I really don't want this to >>set him back in eating
orally.

From what we were told our kids tend to burn calories faster so, yes, it
does make sense. Hannah doesn't gain well either. She is entirely tube
fed and still is only in the 23rd percentile for weight and 39th for
height.

Janet

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