[tri-med] Re: Question on Fevers

Maybe your daughter is unable to adjust or control her body temp?  My daughter 
has t18 and she doesn't sweat.  I have never seen her sweat and she is seven 
years old.  When she gets sick, her temp goes down not up.  I think it's 
neurological.   What is Maiya doing when she gets a high temp?  Is she 
excerting energy?  Is she in a hot environment?  Of course that wouldn't 
explain her high white blood count.
 
Annette
 
 
 
 
--- On Thu, 12/11/08, Callie McMunigal <luckybean15@xxxxxxxxx> wrote:
From: Callie McMunigal <luckybean15@xxxxxxxxx>
Subject: [tri-med] Question on Fevers
To: Tri-Med@xxxxxxxxxxxxx
Date: Thursday, December 11, 2008, 3:02 PM

Hi All.
It has probably been about a year since I've been on the list.  During that
time, we've moved from Florida to West Virginia.  We're back set up on
the
internet again and I wanted to say hello again and ask for some advice.

Our daughter, Maiya, has T8M and is now ~21months old.  Her latest issues
are fevers that come every few weeks or so without any other symptoms.  They
usually range from 103-106 degrees.  We started doing CBCs during these
episodes and realized that her numbers are out of line, especially her white
blood count which is sky high (30-40,000).  They have not been able to
identify the source of infection or illness to date.  She is now being seen
regularly by a hematologist / oncologist to keep an eye out for leukemia.

Our hematologist / oncologist encouraged me to seek info from other parents
on these fevers.  Has anyone else experienced fevers that come back
regularly without other symptoms?  If so, I'd love to learn more about
them.  I've seen some posts elsewhere where the fevers eventually led into
leukemia and other posts where the children eventually outgrew them.  It is
odd to me that the fevers first started just a few days after her 1 year
vaccines and have been coming back ever since.  Does anyone else notice
severe reactions to vaccines?

Thanks for any info you may have.

Callie
Mom to Cade (6yrs) and Maiya T8M (21 months)
West Virginia


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                  Families Helping Families On-line

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