[tri-med] Re: Quest regarding Advocate at Hospital

Barb:
>Does anyone have an experience to share related to having a valuable advocate 
>at their children's >Hosptal? 

>I am referring to someone who acts to co-ordinate care for the complex kids, 
>help parents navigate, >and act as advocate when necessary. 


I've had some good experience with advocates.  One particular lady who was an 
Infant Consultant with Infant Development here in our community.  Also there 
was one maybe even more nurses who stood up to the pediatrician in our 
daughters defence.   Also at Children's Hospital there was one particular nurse 
who was totally caring, encouraging and supportive and could not believe what 
the Neonantologist was so dismal.  So defintely we had some good experiences.  

Betty mom to Pamela((Tri18)13yo, very active, charismatic personality, tube 
fed, reflux,scoliosis fixed, also mom to Tina 27, Allan 22, Annette 20, 
Jennifer 15, Grandma to Lawsen 2 yo and wife to Jim (British Columbia, Canada)




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