[tri-med] Re: Pulmonary Hypertension/Tess in hospital

---- Original Message ----- 
From: "Jocelyn" <jknowd@xxxxxxxxxx>
Subject: [tri-med] Re: Pulmonary Hypertension/Tess in hospital


> I will keep you informed how she is going. Those of you who pray keep
> up the good work. Those of you who use power of positive thought keep
> it up too. I am a great believer in BOTH.


Hi Jocelyn...please do keep updating as you can :o) And can someone please 
explain exactly what Pulmonary Hypertension is???

Sorry I didn't write sooner...I've been under the weather myself since I 
woke up with a sore throat a week ago last Saturday...I got a cold and I'm 
stuck in that nasty stage where I start coughing and can't stop until Imyself 
and wet my pants in one fell swoop :o( A couple of times this past 
week I started responding to some email and got one done and went to start 
on another and coughing overtook me :o( I couldn't even go to Devon's awards 
ceremony :o( By the way...he got an award for "most improved social 
skills"...but that's another post :o)

At first I wasn't concerned because I figured the sleep study wasn't an 
emergency kind of thing...but now I'm concerned...bloody vomit sounds scary 
to me  :o( That coupled with Tess not acting "Tess-Like"...well...she needs 
to feel better. You know I'm both praying for her and sending positive 
thoughts too...and of course Devon sends his tummy zerberts :o)

Take are and squish each other for us :O)

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to 
Nick (15 yrs old...lover of Fishing, Dragons, Turtles, Metroid Prime, 
RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (10 
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Pooh, Elmo, & food 
in general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper 
the Wonder Dog...our 9 ? year old yellow lab adopted from FL Lab Rescue 
12/13/02 :o)
Please visit the webpage my wonderful friend Karen made for me on our 
trisomy listserv at:
http://www.trisomyonline.org/victor.htm
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our 3 boys on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://livingwithtrisomy13.org/album9.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"We love the things we love for what they are"
Robert Frost



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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