[tri-med] Re: Public Health Care Alert/Canada

Oh my goodness!  Far too many pharmaceuticals for a small baby!  Chloral 
Hydrate?  That one is especially bad as there is no antidote.  It can only be 
metabolized.  We on this list have talked about how our kids metabolize 
differently than the general population.  We came to find out that morphine was 
causing Bryson's apnea at 2 weeks old when he stopped breathing 49 times one 
day.  It was prescribed by the doctors with hospice.  15 minutes after 
administering morphine, he would stop breathing, he sat levels were very low 
and we had to resussitate him that many times.  (we were at home by the way)  
This was during that time of "Take your baby home and love him".  We stopped 
with any drugs and he improved.  They said he might be crying from "pain", but 
offered no explanation why he'd be in pain.  We began to take care of Bryson 
OUR way and he has had no major problems or interventions.  
I can't believe that any committee or the Coroner would find nothing wrong with 
that review.  It's despicable, really!
I am so sorry that happened to little Annie.  My heart aches for all you've 
been through and still no justice for Annie.
Doretta

> From: b_farlow@xxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Public Health Care Alert/Canada
> Date: Sun, 19 Jul 2009 03:00:46 +0000
> 
> 
> 
> 
> 
> 
> 
> 
> 
> Karen, 
> 
> I must say that I am very impressed with the accountability that exists in 
> Australia. 
> 
> My guess is that the reason they didn't do the "water" trick with the 
> morphine here is that there is no accountability and the chance that it would 
> cause a problem was one in a million. 
> 
> For example, it appears as if the Coroner and his Peds committee fabricated a 
> report that they labeled "forensic audit" (meaning it could be used in court 
> by the hospital to defend themselves) in court if necessary. The chance of a 
> trial occurring is almost zero because of the value of Annie's life in court. 
> 
> I am aware of the requirement to triage, of course. But that is different 
> than a policy that withholds treatment from an infant "with a condition" 
> despite the fact that there are empty beds. The hospital's defintion 
> specifically stated "supportive care" for triers and the governement home 
> device program specifically withholds apnea monitors from infants who have 
> apnea due to a "pre-existing condition."
> 
> It is certain that a government could not get doctors to abide by a policy 
> they don't agree with but I am sure you would agree that if a 
> government/hospital had a no-treat policy for tri 13/18 that would go down 
> smooth as silk for most doctors. 
> 
> As far as we know, Sam Sansalone is the only parent who has been successful 
> in having life saving treatment (TOF CArdiac) for this trier in the last 
> decade, with the exception of one recently in AB where the staff was quite 
> aware of what happened to us. (as per SOFT records) His wife is a doc and he 
> is an incredible advocate. 
> http://www.youtube.com/watch?v=UNzJt8fbavo&feature=related  His daughter, 
> with full tri 13, is now 8. She is walking and doing quite well for herself. 
> Rarely in the hospital. When she was 3 she had seizures and the doctor 
> (ironically, the one who was to become Annie's doc a year later) kept 
> increasing the phenobarbital and told the parents it was just tri 13 and 
> nothing could be done. The parents could see that their daughter was going 
> into toxic shock and there was an apparent refusal to look past the tri 13 
> diagnosis. Parents were frantic and took rather extreme measures but finally 
> got a specialist. It was a vitimin B6 deficiency. No seizures have occ
>  urred again.
> 
> From what you tell me Karen, there is a very significant difference between 
> our systems when it comes to our kids. I emphasize to you again that here it 
> is the doctors, hospitals and governement policies that cause the problem and 
> there is no accountability at all. There is nobody to complain to about 
> hospitals. 
> 
> Below is an appendix from the medical review. This is what the lawyers have 
> referred to in writing as "mere oversights". The American doctor said he had 
> never seen anything like it. Believe me, it is a twilight zone. 
> 
> Barb
> 
> 
> 
> 
> 
> Table of Nursing Violations in the
> Final 3. 5 Hours of the Life of Annie Farlow
> 
>  
> 
>  
> 
> 
> 
> 
>  
>   
>   Violation #
>   
>   
>   Description
>   
>  
>  
>   
>    1
>   
>   
>   0700 hrs. Administration of supplemental dosage of 150 mg. Chloral
>   Hydrate.  No doctor?s order.  
>    
>   
>  
>  
>   
>   2
>   
>   
>   0700 hrs.  Withdrawal of 100mcg/2ml Fentanyl from narcotic
>   cabinet No doctor?s order, no double signature, no Fentanyl shown as wasted
>   or returned. 
>    
>   
>  
>  
>   
>   3
>   
>   
>   0845 hrs.  Withdrawal of 2mg Morphine. No double
>   signature, no Morphine shown as wasted, returned or administered.
>    
>   
>  
>  
>   
>   4.
>   
>   
>   0945 hrs. Withdrawal of 2
>   X 10mg Morphine. No doctor?s order, no double signature, no Morphine shown 
> as
>   wasted or returned.
>    
>   
>  
>  
>   
>   5
>   
>   
>   Narcotic Control Report
>   not reconciled (August 11-12, 1900 hrs. to 0700 hrs.)
>    
>   
>  
>  
>   
>   6
>   
>   
>   0750 CIMS Report shows
>   system alarms as being turned off. No doctor?s order or DNR order written.
>    
>   
>  
>  
>   
>   7
>   
>   
>   Lasix due to be given at
>   0800 hrs.  No MAR available to
>   determine if not administered or not recorded.
>    
>   
>  
>  
>   
>   8
>    
>   
>   
>   Aldactazide due to be
>   given at 0900 hrs. No MAR available to determine if not administered or not
>   recorded. 
>   
>  
> 
> 
> 
> 
>  
> 
> Note: 
> 
> 1.      No specific cause of death could be determined.
> Coroner deemed cause of death to be ?complications of Trisomy 13?
> 
> 2.      Detailed critical care data shows hemodynamic stability;
> final Saturation rate 97%, good perfusion, brisk pupil reaction until records
> stop one hour prior to death.(Appendix #5)
> 
> 
> 
> 
> 
> 
> 
> 
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