[tri-med] Re: Pseudomonas (sp?)

----- Original Message -----
From: Richard & Mary Capp <mrcapp@xxxxxxxxxxxxxxxxxx>
Subject: [tri-med] Re: Pseudomonas (sp?)


>
> Lori
> pseudomonas is a very virulent bacterial infection, but you can recover
from
> it without being colonized by it, However it is very hard to treat and
most
> forms are slightly resistant to antibiotics.  It does take a long time to
> get rid of it and does take some very strong antibiotics to get rid of it.

Hi Lori!
pseudomonas is the variety of bacteria Devon has always gotten for his ear
infections....which one exactly I couldn't tell you but the pseudomonas is
DEFINITELY what he gets most often. ALl I can tell you is that it IS
treatable...the drainage stinks when that's the one he has...and it does not
ALWAYS colonize (I know this because it has not colonized in Devon)...but it
IS resistant to many antibiotics. We use a variety of drops in Devon's ears
(keep in mind Devon has huge perfs in both eardrums)...we've used Floxin,
Tobramyacin, Tobradex, Cipro and one or two others....we always do a
different one each time. I've heard that it is also very common for
lung/respiratory infections. Because of Devon's asthma...and for a
LOOOOONNNNGGGG time he had major problems with having a flare up everytime
he had a cold....it went straight to his lungs...his doctors always treated
any respiratory infection very aggressively....usually a shot of Rocephin (a
kick butt antibiotic that my peds like very much and so do we!!!) in
addition to a 5-10 day schedule of oral antibiotics...depending on which
oral one we pick (my personal favorite is Zithromax once a day for 5 days
:o) Again...I'm not certain that his respiratory infections have been that
particular variety of bacteria...I only know it's very common and not just
in our kids....but in the general population too (at least that's what my
peds told me and what Devon's Pulmonologist told me as well)...and it has
not colnized in Devon. I should also tell you that with a daily treatment of
Flovent for a long while now (until our last appt. he was also getting one
albuterol dose a day with the Flovent)...Devon's lungs are now the strongest
they've ever been and the colds he gets not longer head straight for his
lungs :o)
Love,
Penny...devoted wife to Joe and "Mom" to Nick (10 yrs...lover of Pokemon,
Legos, Pizza and chocolate icecream) and "Mommy" to Devon (AKA-Stinky
Boy...Lover of Bear, Stuart Little, Barney, Blue, Rolie Polie Olie, Pooh and
Co. and food in general, 5 1/2 years old!!! Full Trisomy 13 w/balanced
translocation 5 and 13)...Brat and KC (the feline children)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!)
And last but not least, check out the homepage I made!
http://www.geocities.com/Heartland/Shores/1963/index.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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