[tri-med] Re: Preparing for our son with Tri9p

Hi Terre,
We live in the South Hill/Graham area.  So you guys are just down the road.
Thanks for the welcome.  I have done lots of research and it is amazing to
me that your daughter is 9 with full Trisomy 18.  I have some friends that
had a daughter with full Trisomy 13.  They were pretty much told that she
had no chance to live at all, mostly due to her drastic heart defects, and
she made it to her 3 month birthday before she passed away.  She was
definitely a miracle baby.  I have learned from all the people I have talked
to on the list that our kids like to prove the Dr.'s wrong.  We are hoping
and praying that our baby boy does the same.  Look forward to talking to you
more in the future.

Melody

On Thu, Jun 11, 2009 at 4:16 PM, Terre Krotzer <terrek@xxxxxxxxxxx> wrote:

> Melody:
>
> Although I know this isn't a place anyone really chooses to
> visit, I welcome you to the list. I see that you are in the
> Seattle/Tacoma area. I live south of Seattle in the Lake
> Tapps/Sumner area. What part of the area are you in?
>
> My reason for being on the list is my daughter, Krissy, who is 9
> years old and is full trisomy 18. Most of our care and treatment
> has come from Mary Bridge in Tacoma but I know we have great
> doctors here in Washington. I've heard the stories but have found
> that we have been able to surround Krissy with doctors and
> therapists that believe in her and in her potential. It sounds
> like you're getting lots of help and support. Here on the list
> are people who definitely understand what you're going through!
>
> Feel free to email me off list if you'd like to talk!
>
> All the best,
> Terre
>
> Mom to Kevin - 22, Keith - 20, Kenny - 16, Korey - 15, and
> precious
> Krissy (better known as Princess Krissy!) (T18) - 9 years - with
> a smile that lights up the world!
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Terre Krotzer
> terre@xxxxxxxxxxxx
>
> " There are two ways of spreading light; to be the candle or the
> mirror that reflects it."
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> Show your family how much you care...
> Get your Will and Living Will in place today...
> www.krotzers.com
>
>
>
> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx] On Behalf Of Melody Lickert
> Sent: Tuesday, June 09, 2009 8:52 PM
> To: Tri-Med@xxxxxxxxxxxxx
> Subject: [tri-med] Preparing for our son with Tri9p
>
>
>  Thank you so much to all the people who have responded to my post
> so far.  I have loved finding out more about your families.  You
> all have been so encouraging and supportive.  Our son, Abram,
> will be delivered at the University of Washington Medical Center
> and they have been really great so far.  They have really
> supported us along the way and everyone is such an expert because
> they specialize in high risk pregnancy.  They admit that they
> don't really know what to expect with little Abram till he is
> here. They can only give their best guesses, but they seem as
> hopeful and committed to him thriving as we are.  I look forward
> to getting to know you better and hear from others!  Thanks again
> Melody wife to Jason, Momma to Mya Elizabeth 19 months, and Abram
> James Due July 8th Trisomy 9p Seattle/Tacoma WA
>
>
>                   Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: