[tri-med] Re: Pregnancy Question

I don't want to be a scare munger but I felt decreased movement with my son and 
around his 26 week it got alot less and I just had this terrible feeling 
something was wrong. Everyone - friends, relatives, husband all said it was 
normal and to stop worrying. By the middle of the week I did not feel any 
movement and after crying myself to sleep that night I got up the next day and 
thought blow it I will listen to me and I went to the hospital for a check up. 
My son was born within 2 hours of arriving at the maternity unit via emergency 
c section.
Now I don't want to send panic to a pregnant mum to be as I can imagine the 
worries you are going through but listen to what your body is telling you and 
not what everyone thinks you want to hear. My son is trisomy 8 mosaic (we 
didn't know before birth) and it was believed but with no proof that he was in 
alot pain when he was inutero because he had a twisted bowel and this needed an 
op.
On lighter notes, my son is now a wonderful little 4 year old with a wicked 
sense of humor and who loves to hit his little sister over the head with his 
Thomas the Tank engines!!
Katy.


----- Original Message ----
From: "Wendlandt, Jill R - DCF" <Jill.Wendlandt@xxxxxxxxxxxxx>
To: "tri-family@xxxxxxxxxxxxx" <tri-family@xxxxxxxxxxxxx>; TRISOMY 9 LIST 
<9tips@xxxxxxxxxx>; "tri-med@xxxxxxxxxxxxx" <tri-med@xxxxxxxxxxxxx>
Sent: Monday, 25 August, 2008 16:00:11
Subject: [tri-med] Pregnancy Question

Is it normal to go a few days without feeling movement when you are carrying a 
child with Trisomy 18?  I am almost 19 weeks but I've been feeling movement for 
over 4 weeks now.  Recently, movement has decreased, and I haven't felt 
anything for a few days.  I'm going to the doctor today, but does anyone recall 
if that was fairly normal (decreased movement)?

-----Original Message-----
From: tri-family-bounce@xxxxxxxxxxxxx [mailto:tri-family-bounce@xxxxxxxxxxxxx] 
On Behalf Of Thea
Sent: Monday, August 25, 2008 8:53 AM
To: TRISOMY 9 LIST; tri-family@xxxxxxxxxxxxx; tri-med@xxxxxxxxxxxxx
Subject: [tri-family] Tri-9 Conference Thank You's

I just want to say "thank you" to all 15 families (16 kiddo's) who attended our 
first "Trisomy 9" conference!!!  It was incredible.  I feel so blessed to have 
met all of you.  I know that I didn't get a chance to sit down with each and 
everyone of you to talk or laugh, but, I feel that I now "know" you guys.  Just 
as Shirley said, "we are part of each others extended family,now"...that's 
amazing!!!  It meant so much to me to be able to feel for the first time that 
we were together in an accepted group...no one was giving us the crazy eye or 
funny comments because of who we were!
I want you to know that being able to organize this conference was such an 
amazingly humbling experience for me.  It afforded me the opportunity to 
challenge myself, know myself on a more deeper level, understand more about 
life and community and feel better about myself (even through my back/headache 
deals) than I've felt in years!  Thank you!  I look forward to getting started 
on next years conference in a week, well maybe TWO!  This journey was so 
incredible.  It makes me feel wonderful inside.
Many of you helped me in so many ways to put the entire weekend together and I 
want to say a special thanks to several of you.  Freda, thank you for being the 
listening ear when times were frustrating and for giving me guidance along the 
way!  Jim, thank you for putting together the "silent auction"...what a 
wonderful idea.  And, for all of your support (esp techy wise, I know you are 
proud of me for actually listening to what to do and doing it {turning the room 
on BY MYSELF!} Thank you for helping out so much!  Vasi, thank you for being 
such a great friend! You, also listened to me, did not judge, and added a few 
"special" comments when needed.  I feel so blessed to have the opportunity to 
know that you are in my "back yard" and us being able to be there for each 
other is like only 30 min's away!  Cris, thank you so much for coordinating the 
VERY MUCH NEEDED gift certificate!  I cannot wait to use it.  Plus, you guys 
are right up
the road and I know we'll do nothing else but get closer and have the 
opportunity to become great friends.  Jennie, thank you for taking over the 
check in stuff for me...it could not have worked with out you!  It means a 
great deal to know that I can count on you.
John T, thanks for your "IT" assistance.  Right now, it's a little over my 
head, but in a few days after the massage, I'll get it!  Debbie B., thank you 
for being a listening ear as well and not judging.  I know I didn't get a 
chance to sit with you for very long, but I feel that I can count on you to 
listen again.  You gave an amazing presentation.  I know that I can speak for 
everyone else when I say, that "you are part of our extended family as well".  
But, next year, you have to bring your kiddo's, please!  Lastly, to noahs 
neverending rainbow for such a wonderful picnic.  The food was outstanding!  
Dana, you are a great friend as well (I'll be calling you soon).  Thank you, 
Thank you!
I am sure that I left some very important people out, however, my brain is so 
full of thoughts, I cannot think of another person to thank at this moment, 
except for the most important person..."HAIDEN".  Without my son, I would not 
have met any of you.  Without him, I would still be where I was before he was 
in my life...concerned with myself, money, clothes, material things that mean 
nothing.  Haiden is my inspiration.  I would not be who I am today without him. 
 I would not have met SO MANY UNBELIEVABLY INCREDIBLE people without him.  I 
would not have become "ME" without him.  So, thank you..."Haiggie"...YOU are 
absolutely amazing and I love you more than words can ever express!!!  God knew 
just why exactly he gave you to me and I cannot thank him enough.

To those that missed this conference, I want you to know that you missed such 
an incredible experience.  I am not telling you that to "gloat", I want you to 
know that so that you can look forward to next years conference and know that 
it will be just as incredible.  Okay, maybe just a little "gloating",  haha!  
JK!
THANK YOU EVERYONE FOR ALLOWING ME THE OPPORTUNITY TO MEET YOU AND KNOW YOU AND 
KNOW THAT WE ARE NOW "FAMILY"!  THANKS FOR THE MEMORIES!

PS:  I will get all of the information out to everyone in a few days.  I work 
Tues and Wed, Thursday I have appts, so, probably Friday, I'll start pilfering 
through the ABYSS!  After that, it'll probably take me several weeks to put 
everything together, but know, you will get it!

We'll talk about WHO will be part of the organizing team, too!  Yes, any one of 
you who would like to take part in making next years conference HAPPEN, will 
have jobs to do!  But, again, not for a little while yet.

Lots of hugs, love and smiles-

Take care-
Thea, mom to Haiden (6 yrs old: T9p but doesn't know it...4-wheeler rider, 
risk-taker (loves to race and take corners too fast), horseback rider (actually 
a true cowboy b/c he held on through 3,count em' three bucks before he was 
thrown!  Then, got back on and showed that horse who was boss.) adventurer (esp 
finding fairies w/ his granny) but most of all...the sweetest, most loving son 
a mother could ask for!, Ava (18 beautiful months going on 5, loves to shop, 
esp for shoes, make-up is her best crayon, even though she can be frilly, she 
loves to get dirty helping her daddy! and the most beautiful little girl in the 
world!, and wife to Brian (almost 8 years. He's my partner, my friend, and the 
best husband and father ever. I am already so very lucky that I wouldn't change 
my life for the world!!!!)
Optimism is the faith that leads to achievement. Nothing can be done without 
hope and confidence!~Helen Keller
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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                  Building ___ooOOoo__ Rainbows
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                  Families Helping Families On-line

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