[tri-med] Re: Prayers, good vibes, wishes needed

Thanks Karen!  Everyone keeps telling me that Logan is so much bigger and 
stronger now then he ever was.  Which is true.  He is up to 16 lbs which is the 
size they wanted him to be.  So common sense would say to me that he has been 
through surgeries at less then 2lbs and made it.  He has pulled through all of 
the impossible.  So why now would I shy away from this when it looks as though 
this should be nothing for him?
 
The strange part is before when Logan needed the surgeries the Dr's and nurses 
where uncomfortable doing it because they were questioning if he would pull 
through it ok.  I had no fears then.  Now the tables are turned.  They are like 
look he needs this done and he is healthy and strong and I am thinking to 
myself I am not so sure.  I have considered postponing this until later.  
However, I don't think that it will do anything but make my fears more intense. 
 I feel like I can't breath just thinking about it.  I have the prayer chains 
going though!  
 
To distract me I have decided to move.  I found a new place that is on the 1st 
floor (instead of the 3rd).  It has all of the nice things I don't have now 
like a dishwasher, garbage disposal, central air, pool, 2 floors, and closet 
space.  So I lined up about 13 people so far to help me move that day.  I have 
boxes here and trash bags to start pitching things.  I adopted or in the 
process of adopting a taco bell dog.  She is wonderful.  She is here now for a 
trial.  She goes back today and then I will get her after Logan gets out of the 
hospital.  I am going to counseling to help me with the post traumatic stress 
that I am dealing with as a result of the last 17 months with Logan.  I am on 
medication to help me too.  I am fighting tooth and nail to get child support 
from Logan's father.  I have to go to a contempt hearing on Wednesday for him 
not paying.  He will probably go to jail until he comes up with $800 to pay me. 
 Unless of course he has it with him that day.  His wife was pulling all kinds 
of crap on me back in March trying to scare me into dropping the child support. 
 So my attorney wrote them a letter they are not allowed to be on my property, 
contact me in anyway other then through her by writing.  So if he shows on 
Wednesday I am quite certain he is going to say "I won't allow him to see his 
son".  Which I will counter with he can set up supervised visits with my 
attorney.  Either way I am covered as far as that goes.  So that would be why I 
haven't been on the board in a while.  
 
Has anyone heard from Stephanie on how Phoebe is doing?  Tina 

Karen <karens@xxxxxxxxxxxxxxxx> wrote:

----- Original Message ----- 
From: "Tina Arbogast"
>>Do any of the other children have an imperforated anus that could advise
me?

Tina,
I can't really advise you on this - and I know that in the last 40 years
medicine has advanced a long way. But I can tell you that 40 plus years ago
my sister, Joanne, had this procedure. Joanne was my older sister and she
was born with an imperforate anus. She had a colostomy for 18 months and
then they made the rectum and reversed the colostomy. 40 years ago this was
truly experimental surgery but still Jo came through the actual surgery fine
and the bowel and anus worked well.
Jo did die some months later - but it was unrelated to the surgery.
My mother doesn't talk about Jo much to anyone but family - but if it is of
some help I will try and get her to dictate a note if you like. (Mum thinks
the computer is some alien creature :-))
A group that may be able to help with experiences would be the Hirschprungs
support group - imperforate anus is not uncommon with kiddies who have
Hirschprungs. My eldest had mild Hirschprungs but did not have the
imperforate anus so I can't offer you anything personally on the pull
through. Anything that I said would be second hand from others I know
through the Hirschprungs group. It is scary stuff though - that I remember
well!!! So my thoughts and prayers are with you - especially as this is so
close to home and for some reason I have been thinking a lot about that time
in my life this last week or so. Did I say the other day that there was no
such thing as a coincidence?

"Kind words do not cost much. They never blister the tongue or lips. They
make other people good-natured. They also produce their own image on men's
souls, and a beautiful image it is."
- Blaise Pascal (1623-1662) -

Keep Looking For Rainbows!!
Karen, Mum to Alex (8 years, T-18 Mosaic)

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line


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