[tri-med] Re: Prayers, good vibes, wishes needed

----- Original Message ----- 
From: "Tina Arbogast"
>>Do any of the other children have an imperforated anus that could advise
me?

Tina,
I can't really advise you on this - and I know that in the last 40 years
medicine has advanced a long way. But I can tell you that 40 plus years ago
my sister, Joanne, had this procedure. Joanne was my older sister and she
was born with an imperforate anus. She had a colostomy for 18 months and
then they made the rectum and reversed the colostomy. 40 years ago this was
truly experimental surgery but still Jo came through the actual surgery fine
and the bowel and anus worked well.
Jo did die some months later - but it was unrelated to the surgery.
My mother doesn't talk about Jo much to anyone but family - but if it is of
some help I will try and get her to dictate a note if you like. (Mum thinks
the computer is some alien creature :-))
A group that may be able to help with experiences would be the Hirschprungs
support group - imperforate anus is not uncommon with kiddies who have
Hirschprungs. My eldest had mild Hirschprungs but did not have the
imperforate anus so I can't offer you anything personally on the pull
through. Anything that I said would be second hand from others I know
through the Hirschprungs group. It is scary stuff though - that I remember
well!!! So my thoughts and prayers are with you - especially as this is so
close to home and for some reason I have been thinking a lot about that time
in my life this last week or so. Did I say the other day that there was no
such thing as a coincidence?

"Kind words do not cost much. They never blister the tongue or lips. They
make other people good-natured. They also produce their own image on men's
souls, and a beautiful image it is."
- Blaise Pascal (1623-1662) -

Keep Looking For Rainbows!!
Karen, Mum to Alex (8 years, T-18 Mosaic)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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