[tri-med] Re: Prayers for Soleah/ new stuff with Dom

Nan:
   
  I watch Soleah's weight as I am always afraid of complicating problems with 
extra weight.  I still help her in and out of tub, bath her, change her etc. so 
I am worried about having to move her around.  Her leg length is good--it only 
looked of because her hip was being pulled up.  I could see her toe nails 
getting difficult as they grow funny--kind of straight them outward.  So I keep 
them short and it take two of us to cut them.
NanlorW@xxxxxxx wrote:
  
In a message dated 06/14/2008 5:28:33 AM, nancii@xxxxxxxxxx writes:

<< I almost cried as she was so straight and pretty >>

When Dom had his rods placed, they also took some of the growth plate in his 
left leg to slow it down so it would not be so much longer than the right leg. 
It seemed to work well for years and even though he had lifts to put in his 
shoes, with all the group home moves, he lost them. I had noticed he was 
listing more and more to the right the last year or so and figured when we got 
to 
the first adult orthopedist appointment (this coming Monday), we would get new 
lifts or something. But I also have been taking him to a podiatrist to cut his 
funky toenails, (because he won't do it and won't let me touch them). At the 
beginning of the year we talked to the doc about maybe getting a lift for his 
right shoe. The guy took impressions and the next thing we knew, he had a short 
splint to help support Dom's ankle with a built in lift. He had club foot 
surgery when he was about six months old and I guess the whole thing had 
started 
to turn over a bit. Dom has gained about 35 pounds in the last four years and 
that is starting to have an effect on his feet. Anyway, the doc put the 
splint/lift on him and Dom got his shoes on and walked out of the office tall 
and 
straight. I almost cried. I just had not realized how much he was leaning off 
to 
Joneses. When I got to church on Sunday, I almost did not recognize him from 
the back becasue he was sitting so straight. The other big news is we had a 
sleep study done on him and sure enough, he was having sleep apneas and he is 
now on CPAP. I would not have known to even mention this to his doc if it had 
not been for everyone sharing information on this list. Now I am hoping that 
his 
complaints of aches and pains and headaches might be resolved. He is very 
proud of being almost as tall as me. LOL

Nan-mom to Dom, 24, tri 18 mosaic and bipolar; and Ali, 25, autism, TS, ADHD



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                  Families Helping Families On-line

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