[tri-med] Re: Prayers for Soleah

Oh this is wonderful news! Thank you, this so encouraging.
Yes, very difficult decision, difficult procedure but well worth enduring.
I hope she continues to heal beautifully.

Catherine, mum of Becca 33yrs old, Trisomy 13 Mosaic



From: Nanci Grimes <nancii@xxxxxxxxxx>
Reply-To: tri-med@xxxxxxxxxxxxx
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: Prayers for Soleah
Date: Sat, 14 Jun 2008 06:27:04 -0700 (PDT)

Soleah is doing really well.  Her surgery was June 2 (Monday) and we were 
able to come home on Saturday afternoon six days later so she was a little 
ahead of schedule in coming home.  As with all of our kids, she had a tough 
time balancing the pain meds with breathing so we went up and down for 24 
hours but really only the first few hours were bad.  She started grabbing 
lines as soon as she came too and then they over medicated her then needed 
to give her a stimulant . . . then the balancing act began.  I had to watch 
her like a hawk because every time she woke up even the slightest, we lost 
an iv, drain tube, whatever was handy.  I got a blood bath at least once a 
day.  If I had a dollar for every time someone said, "Boy, she is strong!"  
The surgery itself went great and she is so much straighter--her shoulders 
were almost 6 inches difference and they look identical now.  She has a tiny 
curve but with clothes you cannot see it.  She is full of hardware--two 
parallel rods,
  lots of screws and hooks, about an 18 inch incision.  But as always she 
has an incredible pain tolerance and only came home with tylenol 
suppositories and a small dose of valium of she got too restless--it's a 
week later she's had neither.  Of course, she was on some heavy stuff the 
first few days.  We had a morphine pump so I was able to keep her pretty 
well sedated for the first few days.  Right now, she walks with assistance 
and it's hard to keep her balance but she seems better each day.  It's funny 
how we can retrain our body to accomodate just about any twists, turns, 
defficiencies . . . so now she is having to learn to walk upright.  The 
first time I watched the nurses walk her down the hall, I almost cried as 
she was so straight and pretty--I hadn't even though about the benefits of 
the surgery.  I just knew I was dreading it and that she needed it.  So now 
it's just recovery and PT - we've taken the first half of summer off.  I'm 
still eyeing that SOFT trip . . .
  that would be such a nice break from the Texas sun!

Catherine Trewin <ctrewin@xxxxxxxxxxxx> wrote:
   Any news of Soleah?

Catherine



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Nanci Grimes
Sent: Sunday, June 01, 2008 7:59 AM
To: Trisomy Med
Subject: [tri-med] Prayers for Soleah


Tomorrow morning (first surgery!) Soleah will be having scoliosis surgery.
Her curve has moved/increased one degree a month for 24 months . . . she is
now at 46+ degrees curve as of April. She will be having two rods fused to
her spine so she will not need a cast. The surgeon has promised to use
extra screw, hooks and wires so that she will be indestructible. We will be
at Texas Childrens for 7-10 days then home recovering for awhile. She woke
up in a super good mood this morning--poor thing doesn't know what's coming
. . .
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
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Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                   Building ___ooOOoo__ Rainbows
                        www.trisomyonline.org
                   Families Helping Families On-line


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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