[tri-med] Re: Prayers for Soleah

Soleah is doing really well.  Her surgery was June 2 (Monday) and we were able 
to come home on Saturday afternoon six days later so she was a little ahead of 
schedule in coming home.  As with all of our kids, she had a tough time 
balancing the pain meds with breathing so we went up and down for 24 hours but 
really only the first few hours were bad.  She started grabbing lines as soon 
as she came too and then they over medicated her then needed to give her a 
stimulant . . . then the balancing act began.  I had to watch her like a hawk 
because every time she woke up even the slightest, we lost an iv, drain tube, 
whatever was handy.  I got a blood bath at least once a day.  If I had a dollar 
for every time someone said, "Boy, she is strong!"  The surgery itself went 
great and she is so much straighter--her shoulders were almost 6 inches 
difference and they look identical now.  She has a tiny curve but with clothes 
you cannot see it.  She is full of hardware--two parallel rods,
 lots of screws and hooks, about an 18 inch incision.  But as always she has an 
incredible pain tolerance and only came home with tylenol suppositories and a 
small dose of valium of she got too restless--it's a week later she's had 
neither.  Of course, she was on some heavy stuff the first few days.  We had a 
morphine pump so I was able to keep her pretty well sedated for the first few 
days.  Right now, she walks with assistance and it's hard to keep her balance 
but she seems better each day.  It's funny how we can retrain our body to 
accomodate just about any twists, turns, defficiencies . . . so now she is 
having to learn to walk upright.  The first time I watched the nurses walk her 
down the hall, I almost cried as she was so straight and pretty--I hadn't even 
though about the benefits of the surgery.  I just knew I was dreading it and 
that she needed it.  So now it's just recovery and PT - we've taken the first 
half of summer off.  I'm still eyeing that SOFT trip . . .
 that would be such a nice break from the Texas sun!
  
Catherine Trewin <ctrewin@xxxxxxxxxxxx> wrote:
  Any news of Soleah?

Catherine



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Nanci Grimes
Sent: Sunday, June 01, 2008 7:59 AM
To: Trisomy Med
Subject: [tri-med] Prayers for Soleah


Tomorrow morning (first surgery!) Soleah will be having scoliosis surgery.
Her curve has moved/increased one degree a month for 24 months . . . she is
now at 46+ degrees curve as of April. She will be having two rods fused to
her spine so she will not need a cast. The surgeon has promised to use
extra screw, hooks and wires so that she will be indestructible. We will be
at Texas Childrens for 7-10 days then home recovering for awhile. She woke
up in a super good mood this morning--poor thing doesn't know what's coming
. . .
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line
No virus found in this incoming message.
Checked by AVG.
Version: 7.5.524 / Virus Database: 269.24.4/1476 - Release Date: 5/31/08
12:25 PM

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: