[tri-med] Re: Possible seizure activity...?-Jennifer

Face and hair--don't get me started!  It's all I can do to carry Elanor for 
30 seconds without getting spitty hands in my hair or a finger up my nose! 
:)  I will have to try kooshes.  I see them in the store on days I'm out of 
spending money, then forget about them when I have it!

Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral palsy 
& spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19; 
and wife to Andrew

----- Original Message ----- 
From: "Kraig Warnemuende" <ad6075@xxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, March 30, 2005 11:32 AM
Subject: [tri-med] Re: Possible seizure activity...?-Jennifer


> Wow!  Thanks, Jennifer!  That's VERY encouraging!  It'll be good to see
> the neuro, I suppose, but I hope it doesn't mean we'll have to be faced
> with all sorts of tests, etc.  Sigh!  It would happen right now when
> we're trying to get all our other annual checkups in!  One more to add
> to the list....
>
> Keren loves feeling things, too.  Her current favorite seems to be
> kooshes :) , but anyone's face or hair is also fair game.
>
> Loren (wife to Kraig, mom to Keren, T18, two years old (9/27/02), and
> new little one due 7/13/05)
> Southeast Michigan
> http://webpages.eng.wayne.edu/~ad6075
>
> On Tuesday, March 29, 2005, at 10:59 AM, Jennifer Vanderbeek wrote:
>
>> Weird, Elanor had the same thing happen at her sleep study.  She has
>> always
>> rubbed the back of her head on her pillow/whatever she is laying on.
>> She
>> used to do is so much she had a big bald spot on the back of her head,
>> and
>> sometimes got a sore.  When she was really tiny she would put herself
>> to
>> sleep by doing that.  I think it was self-stim, like you were saying,
>> or
>> comforting to her, like how some kids stroke their teddy or favorite
>> blankie.  After talking to me, the tech and the sleep specialist didn't
>> think there was anything to worry about since we haven't had any other
>> indication of seizures.  She doesn't do it much anymore.  Now Elanor
>> scratches whatever she is laying/sitting on, but backwards.  She puts
>> her
>> hand palm up beside her head and scratches up.  She really digs on
>> coarse,
>> noisy material, and loves to scratch our new microfiber couch.  She
>> loves to
>> listen to the noise it make too.  She's pretty funny about it.
>> I hope things go well at the neurologist.  Let us know!
>>
>> Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral
>> palsy
>> & spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder),
>> 19;
>> and wife to Andrew
>>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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