[tri-med] Re: Possible seizure activity...?-Jennifer

Wow!  Thanks, Jennifer!  That's VERY encouraging!  It'll be good to see 
the neuro, I suppose, but I hope it doesn't mean we'll have to be faced 
with all sorts of tests, etc.  Sigh!  It would happen right now when 
we're trying to get all our other annual checkups in!  One more to add 
to the list....

Keren loves feeling things, too.  Her current favorite seems to be 
kooshes :) , but anyone's face or hair is also fair game.

Loren (wife to Kraig, mom to Keren, T18, two years old (9/27/02), and 
new little one due 7/13/05)
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075

On Tuesday, March 29, 2005, at 10:59 AM, Jennifer Vanderbeek wrote:

> Weird, Elanor had the same thing happen at her sleep study.  She has 
> always
> rubbed the back of her head on her pillow/whatever she is laying on.  
> She
> used to do is so much she had a big bald spot on the back of her head, 
> and
> sometimes got a sore.  When she was really tiny she would put herself 
> to
> sleep by doing that.  I think it was self-stim, like you were saying, 
> or
> comforting to her, like how some kids stroke their teddy or favorite
> blankie.  After talking to me, the tech and the sleep specialist didn't
> think there was anything to worry about since we haven't had any other
> indication of seizures.  She doesn't do it much anymore.  Now Elanor
> scratches whatever she is laying/sitting on, but backwards.  She puts 
> her
> hand palm up beside her head and scratches up.  She really digs on 
> coarse,
> noisy material, and loves to scratch our new microfiber couch.  She 
> loves to
> listen to the noise it make too.  She's pretty funny about it.
> I hope things go well at the neurologist.  Let us know!
>
> Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral 
> palsy
> & spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 
> 19;
> and wife to Andrew
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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