[tri-med] Politician's son with a disability?

>I think it was Michelle Waite that said in a previous email, that 
>we, who have living Trisomy affected children, have had our opinion 
>on this deeply affected because we happen to have a child with a 
>syndrome living and doing well (in Alex's case fabulously well).  We 
>also we have some, like yourself, who had the choice taken away from 
>them. But I am here to put my hand up, to admit that pre-Tess, I did 
>not give a lot of thought about the real value to the family of a 
>disabled child and would probably have belonged to the 70 something 
>percent of people, ( was this the percent you quoted Michelle?) who 
>hold the view that these kids are not worth saving. I CLEARLY DID 
>NOT KNOW WHAT I WAS TALKING ABOUT. A salutory lesson indeed our dear 
>Tess brought with her. It's the same old story, you have to walk in our shoes.

I noticed in the British press, huge coverage when the son of a 
leading politician died recently  Not Gordon Brown, the other one 
(sadly can't remember his name). He wrote a beautiful moving memorial 
to him and it showed how dearly loved the little boy was. I bet this 
will colour all his decisions in regard to the disabled in Britain 
from now on.  Come on Brits jog my memory for me!!!



>



>Loren your comment made me think of something that I though would be 
>interesting to share.
>
>I suppose all of you are familiar with the growth of "perinatal 
>hospices", especially in the US. (in Canada, we like to emphasize 
>search and destroy and sadly, is seems that many key figures in the 
>Catholic church is on board with that...but that's another topic)
>
>What I have found with perinatal hospices is that they are a 
>breeding ground for perpetuating the myth of universal futility.
>
>They are so focused on beautiful deaths that many are not aware that 
>some children actually live and can benefit from surgery.
>



Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 21  Mathew 20,  Ashleigh 19, Alex 17,  and Tess  (Trisomy 18,) 
age 12 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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