[tri-med] Re: Pneumonia

Oooo....glad Mitchell hasn't taken his out yet! He just likes to stick his
finger in it so he can "talk"....and so I can't suction him. Thanks for that
quick little update on Colton though-I always wonder how the other kids
w/t13 and trachs are doing. :)Thanks
Katie 
Mom to Mitchell t13mosaic


On 5/17/07 4:08 PM, "plugginalongpv" <plugginalongpv@xxxxxxxxxxxxx> wrote:

> Hi Moe and Rana :o)
> My good friends (the Ballard/Harrelson family in CO) have a little boy with
> t13 (Colton)...he just turned 2 yrs old in March. He had a trach done when
> he was under a year old (I think he must have been 3-4 months old (because
> it was Devon's birthday and I got a call that he was not expected to make
> it...the decision to have the trach came very soon after)...without it he
> would have died. He's done beautifully with it and now that he's getting
> older, he takes it out daily and is quite proud of himself. His mama has
> gotten very good at replacing it (better than his nurses) and it's not even
> a big deal to them anymore. He can be off his vent for hour or so at a time
> and if his heart is fixed his pulmonologist says he wouldn't even need the
> trach :o) But it hasn't slowed him down at all :o) AND not all kids with
> trachs need a vent...but Colton does.
> 
> Love,
> Penny...loving & devoted wife to Joe, the best husband in the world...mom to
> Nick (16 yrs old...lover of Fishing, Dragons, Turtles, Blue Collar Comedy
> Tour, RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (11
> yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in
> general. Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper
> the Wonder Dog...our 10? year old yellow lab adopted from FL Lab Rescue
> 12/13/02 :o) Please visit the webpage my wonderful friend Karen made for me
> on our trisomy listserv at:
> http://www.trisomyonline.org/victor.html
> AND...Devon's moment of glory in Exceptional Parent Magazine...
> http://www.eparent.com/familiarfaces/ffaces_4_01.htm
> AND...see our Trooper on FL Lab Rescue's website at:
> http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
> AND :o) http://livingwithtrisomy13.org/album9.htm
> AND http://web.coehs.siu.edu/Grants/TRIS/
> "Those who matter don't judge me .... those who judge me don't matter."
>  
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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