[tri-med] Re: Pneumonia

Thank you Debbie for your input.

To answer your questions, Nejoud Pneum cases are due to colds/aspiration. Lately
she has a lot of secretions and she is teething as well. It all started with a
cold with a lot of coughing and the pneum followed. I just talked to her card.
doctor and he did not mention anything about endocarditis as a possibility.
Nejoud eats by g-tube and I do not know if Trach will be permenant or
temporary, the doctor did not say.
--
moe (dad), Rana (mom), Hamzeh (big brother) and Sweet Nejoud (FULL T-18, Born
4/4/2006).


Quoting Debbie <debbie@xxxxxxxxxxxx>:

> Claire just got out of the hospital.
> She went in with Pneum, and just by chance had an echo done on her heart and
> they found 'endocarditis' which is a bacteria on the hear that can 'shoot'
> out to other organs.  It is possible that the pnuem came from the
> endocarditis.
>
> She probably doesn't have what Claire has, but it is a lesson on how
> something that seems straightforward can be something else.  Like the
> pneum... do they think it is coming from aspiration?  a cold? allergies? do
> they think the trach will come out soon, or in for a lifetime?  does Nejoud
> eat orally or by tube?
>
> Best wishes for Nejoud's speedy recovery...  sorry I couldn't be more
> helpful.  Each baby is so incredibly different.  I've put Claire's website
> below and if you click on her journal, maybe you can find something that
> will be helpful.  We haven't had to deal with a trach before, but I guess if
> it helps them to breathe, we would have done it... and prayed it was only
> temporary.
>
> Debbie and Claire (T18 - 4 years old)
> http://www.debbwebb.com/Claire
>
> On 5/17/07, Moe Taha < taham@xxxxxxxxxxxxxx> wrote:
> >
> > I need some help in making a decision regarding Nejoud's condition. Your
> > help
> > and past experiance is really appriciated and will help me a great deal.
> > Her it
> > goes:
> >
> > Nejoud has been in the Hospital for the last 10-days. She developed
> > pneumonia
> > once again. This time she did not respond to the antibiotic treatment
> > (3-types)for the last 7-days. They did a Broncoscopy this morning and
> > discovered that her vocal cords are not normal (not functioning properly)
> > and
> > also her airway muscle to be weak. They will do a lung and airway CT Scan
> > today
> > to get a better picture.
> >
> > The doctors are telling me that she may need to have a Tracheostomy to
> > help with
> > her breating and reduce the re occurance of pneumonia.  They added that
> > this
> > procedure may cause more infections in the future. So it seems like you
> > replace
> > a problem with another.
> >
> > Did anyone have any similar situation? Any kid with this procedure done
> > and what
> > are the results? Please feel free to express your thoughts on the subject.
> > Thank
> > you very much.
> > --
> > moe (dad), Rana (mom), Hamzeh (big brother) and Sweet Nejoud (T-18, Born
> > 4/4/2006)
> >
> >
> >
> >
> >                   Building ___ooOOoo__ Rainbows
> >                        www.trisomyonline.org
> >                   Families Helping Families On-line
> >
> >
>
>
> --
> Sleep is for Pansies.
>
> Faith sees the invisible, believes the incredible and receives the
> impossible!
> If you want the rainbow, you gotta put up with the rain.
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: