[tri-med] Re: Philina Update

Thanks for the update Fawna. You are a fabulous mom. 

I'm glad to read that Philina is doing well. 

Barb (Annie's mom)
www.anniefarlow.com

> From: fawna33@xxxxxxxxxxxxxx
> To: chromosome456@xxxxxxxxxxxxxxx; tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Philina Update
> Date: Thu, 18 Dec 2008 13:27:32 -0800
> 
> Hi all,
> 
> As you may remember, Philina tested 'diabetic under control' (a blood sugar
> 3 month average of 6) at her physical last August.  Only treatment requested
> by her GP was putting her on a diabetic diet (cut out concentrated sugar and
> starches).  However, she was already dropping weight (1 1/2 lbs since the
> previous Aug, and 3 lbs for the year before that), so I was hesitant to
> follow the letter of his request.  He wasn't concerned about her weight
> though, and said 106 1/2 (fully dressed) was fine.  And as long as she
> stayed above 100 lbs he felt that keeping her on the thin side was best for
> her health.  So unbeknownst to him, I just cut out the sugar and left the
> starches.  And he was pleased with her next 3 month average blood sugar
> results!  She dropped a whole .1 (or just down into the normal range).  But
> to accomplish that .1 drop, she also lost 6 1/2 lbs in 3 months (cutting out
> her beloved gummy bears, and switched her to Diet Coke & no sugar added
> fruit cups, puddings & Jell-O in her program lunches).  So NOW he's worried
> about her weight, and wants me to stuff her full of fat (no sugar added milk
> shakes & hot cocoa)!  Not sure that her cardiologist will be overly pleased
> with that one.  It's a no win situation!  Oh and I tried giving her lite
> fruit juice in her lunch (instead of Diet Coke), but with just one single
> serving bottle of cran grape juice, her old g-tube site reopened and started
> draining again.  (But immediately reclosed when I didn't give her any more.)
> So much for that idea!  My current approach is to provide her with all the
> macaroni & cheese she'll ingest between meals.  That, the hot cocoa w/ no
> sugar added Cool Whip, and no sugar added fruit pie w/ sugar free ice cream
> is our current approach.  Aside from the blood sugar/weight issue, her
> health is good!  Oh and cutting out sugar hasn't had any affect at all on
> her energy level or how warm she feels all the time, so she evidently just
> naturally has a high metabolism.  Will update you again in about another 3
> months.
> 
> Fawna, Research coordinator TRIS Project, mom
> to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
> & Moya Moya Syndrome), Escondido, CA USA
> http://home.mindspring.com/~fawna33/
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: