[tri-med] Re: Philina Update

I think that just cutting out the gummy bears and full strength coke 
should do the trick.

It's interesting about the cran grape juice affecting the stoma site. 
I must remember that, when folks speak about the tube sites leaking. 
You could be on to something there Fawna.

They keep telling us here in Aus, that it is NOT ONLY sugar we should 
be concerned about, but carbohydrates too to keep blood sugar levels 
at a low rate. (sigh again).

This time of year is hell with all the goodies around to temp weak 
willed souls like me.

Thanks for the update. Has Philina come to terms with the coyotes yet 
or is the tambourine still on her bedroom door (just loved that story).



At 08:27 AM 19/12/2008, you wrote:
>Hi all,
>
>As you may remember, Philina tested 'diabetic under control' (a blood sugar
>3 month average of 6) at her physical last August.  Only treatment requested
>by her GP was putting her on a diabetic diet (cut out concentrated sugar and
>starches).  However, she was already dropping weight (1 1/2 lbs since the
>previous Aug, and 3 lbs for the year before that), so I was hesitant to
>follow the letter of his request.  He wasn't concerned about her weight
>though, and said 106 1/2 (fully dressed) was fine.  And as long as she
>stayed above 100 lbs he felt that keeping her on the thin side was best for
>her health.  So unbeknownst to him, I just cut out the sugar and left the
>starches.  And he was pleased with her next 3 month average blood sugar
>results!  She dropped a whole .1 (or just down into the normal range).  But
>to accomplish that .1 drop, she also lost 6 1/2 lbs in 3 months (cutting out
>her beloved gummy bears, and switched her to Diet Coke & no sugar added
>fruit cups, puddings & Jell-O in her program lunches).  So NOW he's worried
>about her weight, and wants me to stuff her full of fat (no sugar added milk
>shakes & hot cocoa)!  Not sure that her cardiologist will be overly pleased
>with that one.  It's a no win situation!  Oh and I tried giving her lite
>fruit juice in her lunch (instead of Diet Coke), but with just one single
>serving bottle of cran grape juice, her old g-tube site reopened and started
>draining again.  (But immediately reclosed when I didn't give her any more.)
>So much for that idea!  My current approach is to provide her with all the
>macaroni & cheese she'll ingest between meals.  That, the hot cocoa w/ no
>sugar added Cool Whip, and no sugar added fruit pie w/ sugar free ice cream
>is our current approach.  Aside from the blood sugar/weight issue, her
>health is good!  Oh and cutting out sugar hasn't had any affect at all on
>her energy level or how warm she feels all the time, so she evidently just
>naturally has a high metabolism.  Will update you again in about another 3
>months.
>
>Fawna, Research coordinator TRIS Project, mom
>to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
>& Moya Moya Syndrome), Escondido, CA USA
>http://home.mindspring.com/~fawna33/
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>No virus found in this incoming message.
>Checked by AVG - http://www.avg.com
>Version: 8.0.176 / Virus Database: 270.9.19/1856 - Release Date: 
>18/12/2008 8:06 PM

Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 21  Mathew 20,  Ashleigh 18, Alex 16,  and Tess  (Trisomy 18,) 
age 11 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.
   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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