[tri-med] Re: Philina Update

----- Original Message -----
From: "Fawna Lockwood"
>Tuesday we did
> all of the pre cath tests (chest x-ray & EKG).  All
> went reasonably well with that.

So glad that went well!!!!! well barring the woes of machine malfunction :-)

>>which was a real good idea since it turns out
> she'd lost 7 lbs (down to 104) with all her lack of
> eating after the eye surgery anesthesia.  Got one
> really good last meal into her before her anesthesia
> for the heart cath.  She cleared her plate.

Glad that she finally had her appetite back - at least for a little while!!!! 
Mind you a chicken pot pie shop sounds really nice!!!!

> ate most of a large bag of gummy bears at the movie.
> Yes, I took her, and she loved it.

I am soooo glad!!!! I have decided that I will take Alex as soon as I can 
afford it.

>>(Yes Duke, we loved Fluffy...LOL.

Awww I can't wait to see fluffy!!! And the chewed up leg LOL

>>They
> figure she should get at least 20 years out of this one.

Still sounds really scary to me!!!

> Her open heart surgery has been scheduled for Dec, 11th, with
> 4 to 5 days in hospital stay required.  I'm not sure I really
> like that day

Well its a good week for heart surgeries - it was the 10th of December in 1999 
that Alex got his pacemaker. And despite mum worrying
about all the worst scenarios Alex came through with flying colours..........

> Her IEP is scheduled for Dec 6th too.  Should make for a very
> interesting month.

OUCH!!!!
Sending lots of love, hugs and prayers for the whole family to get through 
this, safely and with spirits in tact........

The toughest thing about being a housewife is you have no place to stay home 
from.
- Patricia C. Beudoin

Keep Looking for Rainbows!!!
Karen, Mum to Alex (7, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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