[tri-med] Re: Passy Muir valve

Annette,
       So happy for you guys. Always great to hear the good news for your=
 kids.
Love, LouAnn
York ,NE.


"Annette O." wrote:

> Hip, hip, hooray!  Annette got her Passy Muir valve today.  It has been=
 five months since I have heard a sound from that girl.  Our OT told me t=
o put the pmv on for only 60 seconds at first.  I surely didn't know what=
 she was talking about.  I put the thing on that girl, held the oxygen tu=
bing to the pmv, and waited for her to make a noise.  Then, she sneezed. =
 I guess because it didn't come out of her trach, it hurt coming out thro=
ugh the mouth and nose because she started to cry.  Then she heard hersel=
f and stopped.  I was tempted to pinch her just to hear her cry. LOL  I l=
eft the pmv on for about 30-40 minutes.  She did fine.  No desats.  I tho=
ught,  "That OT does not know my nena."  Well, when the nurse came over, =
she did not believe that Annette stayed on that long.  So, I proved it to=
 her.  I am sooooo happy I can hear my child again.  I can't wait for the=
 trach to come off.  Five months and no pneumonia.  Yea!
>
> Annette, wife to Jesse (20 years), mom to Michael (18), Amadeus (almost=
 7), and Annette (17 months and still counting) t18.
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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