[tri-med] Re: Partial Trisomy 5q(amnio errors)


>>>>>>>>>>>What Genevieve has been through i would wish on no one.
Horrible to think that way, don't get me wrong I Love my daughter and
don't resent her. But an error at lab was done. Lawsuit to find out if
human error or
what happened so that it doesn't happen to someone else. I mean gosh
what if a lab tech is Pro-Life and knew what we might have done if we
knew? What if there is an actual flaw in a particular test? I want this
place shut down and laws in effect to prevent this from happeneing
again. Sorry about venting... kills me the lawsuit is wrongful life.
That term hits me wrong...<<<<<<<<<<<<<



I understand what you mean, I had an amino with my second pregnancy
(Mark)  with the idea that I did not want to do the experience of
Rebecca twice........this does not mean I don't love Rebecca, nor that
she is not a  happy person.  I think that each must decide for
themselves what they can manage to do.  I  think about it often as I am
a RN  and for the last year have been in the level 2 site of our
copreratin,presently working in L&D and going to the mother and baby
floor next week.   Often there are genetic terminations and while I
don't have issues about people chosing to end a pregnancy due to a
genetic issue my concern is that while I can be supportive cause I know
the hard road they would walk with this child I wonder if they have been
given the accurate info to make the best decision.  And this not knowing
what they have been told esp since most of the medical field don't
really know the realities of living with a disabled child nor the real
truth of how long some of these kids live leaves me with the feeling
that I would rather not be involed.  As I feel any discussion should be
before they decide to terminate.  
 

Don't fight with dragons, for you are crunchy and good with Ketchup.

Susan mom to Rebecca trisomy 18 moasaic age 12 and Mark LD/ADD age 11.
wife to Glenn
Ontario Canada




                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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