[tri-med] Re: Partial Trisomy 5q(amnio errors)

In a message dated 8/30/03 6:55:45 AM, padgettcastle@xxxxxxxxx writes:

<< this same doctor told me she would never walk and to find care for her. 
She is cruising now along sofa and one day we will walk back into that office 
and tell him he was wrong  >>

I know this is an old story or most on list, but Dom came into my home as a 
foster child when he was 21 months old. He was crawling and had just started to 
pull himself up, but Ali had already been walking for about six months and 
was pretty good at it. So he started cruising the first day he was here. In 
fact 
he went for stitches twice in the first two weeks because he kept letting go 
before he was ready. Anyway, the ped we were seeing told me he had a very grim 
prognosis and I probably wouldn't have him in my home long anyway, because he 
would need such specialized care. The next week, I asked the ped if he 
thought Dom would ever walk and he told me I was holding out way too high 
expectations and I should not let myself get too attached and it was highly 
unlikely he 
would ever walk on his own. Week three, Dom walked into his office under his 
own power, not even holding a hand. Moron doc acted as if he knew that would 
happen all the time.  

Nan---Mom to Dom, 19; Tri18 Mosaic, Bipolar Disorder and Ali, 19; Autism, TS, 
ADHD 
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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