[tri-med] Re: Partial Trisomy 5q

>>>>>>>>I joined this group last night and from what I read so far
everyone seems nice and maybe run across someone with similar situation
or karotyping.
 
My daughter Genevieve was born 7-21-02. We knew something was wrong from
the get go, but since I had an amnio which came back normal we thought
we were imaging it all.
Well the lab made a mistake and the legal battle has been
initiated.<<<<<<<


Welcome Pamela, glad you found us and sorry that you need to be here. My
reason for being here is my daughter Rebecca who has t18m and is 12 yrs
old.  Rebecca is also on tegretol for seizures, and even after all the
years she has been on it it still makes her sleepy, mind you she is on a
large dose and even that keeps her at low blood levels.  Looking forward
to hearing more about your daughter Genevieve


Susan mom to Rebecca 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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