[tri-med] Re: Partial Trisomy 1, Partial Monosomy 6

Somewhere in the old memory bank there seems to be at least one 
person posted with Trisomy 1. If they are still on line I'm sure they 
will post.  But I second what Michelle said, you will get lots of 
support and help with this group for "shared" problems. You certainly 
have had your share with the loss of 2 children already. (((HUGS)))

At 02:54 AM 28/01/2009, you wrote:

>----- Original Message -----
>From: "Sue Stockton" <tgsrrs@xxxxxxxxx>
> > This is my first post to this site, and I'm curious if anyone else has a
> > child or children with this particular diagnosis. I have had three
> > children with this condition. Two have died. My son, Timmy, died at the
> > age of 2. My daughter, Sheila, died at 11 1/2 months. Her twin sister,
> > Becky, is 12 now, and has many physical diagnoses, and mental retardation.
>
>Hi and welcome Sue! Glad you've found us but sorry you had a reason to do
>so.
>
>First off, I can't even come up with adequate words to say with the loss of
>your 2 children..........hugs to you at the very least.
>
>Secondly, those of us without a tri-18 or tri-13 diagnosis are considered
>'rare, rares'. Tend to be few of us around.
>Don't think anyone here has the EXACT same diagnosis (same is true for quite
>a few folks around here) as you dealing with.
>
>While our kids may not have the same dx often they share many common issues
>be they medical, physical, emotional, social, etc.
>If you have any issues or questions there is often someone here who has had
>some experience, knows a direction to send someone for help or at least a
>word of encouragement.
>
>You just never know where a question or comment will lead that benefits so
>many in some way! (a 'behold the power of the list' moment).
>
>I look foreword to hearing more about Becky.
>
>Michelle mom to Alex (21, partial trisomy 14 mosaic) and Molly (18)
>MichiganUSA
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
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>25/01/2009 6:13 PM

"What does an ant know about the Universe?
Just because it has no knowledge of the Universe
Doesn't mean it doesn't exist"

Jocelyn,  wife to Frank,  Mother to Ian, Gillian and Susan, Nanna to 
Carly 21  Mathew 20,  Ashleigh 19, Alex 16,  and Tess  (Trisomy 18,) 
age 11 yrs,  & Benny the Maltese, plus one amazing DIL and two 
amusing SIL's of whom I'm very fond, and their extended family who 
are too many to list here.   

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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