[tri-med] Re: Partial Trisomy 1, Partial Monosomy 6

Sue, I can not remember if anybody else has that particular diagnosis,
but welcome to the list even though the chromosomes are different we
have found that there are many similarities in our children's
problems.  My son, who is now an angel had partial trisomy 16q,
deletion or monosomy 18p with a translocation of the duplicated
material to the area of the deletion,  He had 1 full page of medical
diagnoses and was developmental delayed.  He did live until age 21,
Can you tell us what state or country you live in.

Mary Capp mom to Micheal, ^i^ Richard W., Hannah and wife to Richard E.

On Mon, Jan 26, 2009 at 10:32 PM, Sue Stockton <tgsrrs@xxxxxxxxx> wrote:
> Good evening.
> This is my first post to this site, and I'm curious if anyone else has a 
> child or children with this particular diagnosis.  I have had three children 
> with this condition.  Two have died.  My son, Timmy, died at the age of 2.  
> My daughter, Sheila, died at 11 1/2 months.  Her twin sister, Becky, is 12 
> now, and has many physical diagnoses, and mental retardation.
>
> Thanks for answering.
>
> Sue
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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