[tri-med] Re: Parent advocates for trisomy kids at Riley hospital

In a message dated 10/28/2002 10:34:21 PM Eastern Standard Time, 
Madjake00@xxxxxxx writes:

> One major problem with communication is not giving parents any hope.  Either 
> 
> pre-natally or post-natally, doctors need to give parents realistic news, 
> but 
> also let them know that there are children surviving and living well in all 
> 
> different capacities, some who are even "typically normal".  Big sticking 
> point for me.
> 

Last week Brendan had a MRI and after the test I went up to the NICU where 
Brendan was transferred after his birth.  I want all the DRs and nurses there 
to know that there are surviving trisomy babies and the Drs and nurse can 
tell them about Brendan.

Mikki (Michelle) wife to John (8years)
Mom of Michael (8), Caitlin (5),
Siobhan (2), Brendan T-13 (14 months)
White Plains, NY
Mikkinbrendan@xxxxxxx


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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